ArticlePalliative medicine2023
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals.
Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it, 22 citations in OpenAlex.
- Current status of and factors influencing advance care planning participation among adolescents and young adults with cancer: a mixed-methods systematic review.BMC palliative care · 2026Pooled it
- Exploring Patients' Perceptions of an Advance Care Planning Intervention in the Emergency Department: A Qualitative Study.Academic emergency medicine : official journal of the Society for Academic Emergency Medicine · 2025Trial
- Judicial evaluation of medical consent for patients with impaired decision-making capacity in Japan: a retrospective observational study of court decisions and ethical implications.BMC medical ethics · 2026Observational
- Access to hospice and palliative care for people with a migration background: a qualitative study on challenges and recommendations in end-of-life care.BMC palliative care · 2026Article
- Latent profiles of advance care planning engagement among Chinese older adults.BMC public health · 2026Article
- Factors predicting intention to engage in advance care planning among patients with chronic kidney disease in Thailand: A cross-sectional study.Belitung nursing journal · 2026Article
- Perceived self-efficacy on advance care planning in Latin America: ACP-SEs Latam validation.Frontiers in psychology · 2026Article
- Effects of Illness Perception and Emotion Regulation Strategies on Posttraumatic Growth in Lung Cancer Chemotherapy Patients and Their Family Caregivers: An Actor-Partner Interdependence Model Analysis.Nursing research and practice · 2026Article
- "Everything I do is for your own good!" Exploring the real experience of family support for cancer survivors' return-to-work in China: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Implementation, Processes and Outcomes of Advance Care Planning: A Culturally and Contextually Appropriate Programme Theory Developed in Chinese Long-Term Care Facilities.Health expectations : an international journal of public participation in health care and health policy · 2025Article
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- Understanding attitudes and preferences towards advance care planning in older adults: Insights from a cross-sectional study in primary care.Palliative care and social practice · 2025Article
- Trajectories of family functioning and financial toxicity in patients with glioma: a longitudinal study.Frontiers in public health · 2025Article
- Correlation between benefit finding and caregiving abilities among family caregivers of patients with lung cancer: a network analysis.Frontiers in psychology · 2024Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily members can support advance care planning conversations. However, how family involvement in advance care planning operates to achieve goal-concordant care remains unclear.
aimTo explore how family involvement impacts the process of advance care planning for advanced cancer patients and their family members to achieve goal-concordant care in Japan.
designQualitative study incorporating semi-structured in-depth interviews with thematic analysis informed by Family Systems Theory. SETTING/
participantsMedical oncology departments at two tertiary hospitals in Japan. A purposive sample of 13 advanced cancer patients, 10 family members and 9 healthcare professionals who cared for them.
resultsTwenty-five interviews were conducted, comprising 7 dyads of patients and their family members and 18 individual interviews. Four themes were identified: characteristics of patients and family members and their views on illness and advance care planning; family context and communication; interactions with healthcare professionals and societal and cultural influences; and family members' acceptance, preparation and confidence. Family involvement was observed as being variable at an individual level and also across generations. Family members provided patients with the instrumental and emotional support that facilitated the advance care planning process. Family involvement enabled family members to better prepare for realising patients' wishes. It increased family members' confidence in surrogate decision-making.
conclusionsTwo mechanisms of how family involvement may enable goal-concordant care were identified: family members' support provision and their preparation for realising patients' wishes. Healthcare professionals should assess family's readiness to engage in advance care planning, and the time required to prepare them for the process.
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