Evidence map›Paper›PMID 37721783›Full record

ArticleEuropean journal of physical and rehabilitation medicine2023

Assessment of activities and participation of people by rehabilitation-focused clinical registries: a systematic scoping review.

Ruvistay Gutierrez-Arias, Ximena Neculhueque-Zapata, Raúl Valenzuela-Suazo, Maria-Jose Oliveros, Camilo Morales, Luis Vásquez, Yorschua Jalil, Gabriel N Marzuca-Nassr, Jacqueline L Inostroza Quiroz, Rocío Fuentes-Aspe and 6 more

Abstract readScoping Review
In one paragraph

Article in European journal of physical and rehabilitation medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Ruvistay Gutierrez-AriasDepartment of Support in Integral Cardiopulmonary Rehabilitation, National Thorax Institute, Santiago, Chile.
Ximena Neculhueque-ZapataDepartment of Rehabilitation and Disability, Subsecretary of Public Health, Ministry of Health, Santiago, Chile.
Raúl Valenzuela-SuazoDepartment of Rehabilitation and Disability, Subsecretary of Public Health, Ministry of Health, Santiago, Chile.
Maria-Jose OliverosDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Camilo MoralesDepartment of Therapeutical Protocols, Faculty of Health Sciences, Catholic University of Temuco, Temuco, Chile.
Luis VásquezDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Yorschua JalilDepartment of Intensive Care Medicine, Faculty of Medicine, Pontifical Catholic University of Chile, Santiago, Chile.
Gabriel N Marzuca-NassrDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Jacqueline L Inostroza QuirozDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Rocío Fuentes-AspeDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Ricardo SolanoDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Gabriel Salgado-MaldonadoDepartment of Support in Integral Cardiopulmonary Rehabilitation, National Thorax Institute, Santiago, Chile.
Raúl Aguilera-EguíaDepartment of Public Health, Faculty of Medicine, Catholic University of Santísima Concepción, Concepción, Chile.
Camilo Águila-VillanuevaDepartment of Rehabilitation and Disability, Subsecretary of Public Health, Ministry of Health, Santiago, Chile.
Carolina Garcés-BurgosDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile.
Pamela SeronDepartment of Rehabilitation Sciences, Faculty of Medicine, University of La Frontera, Temuco, Chile - pamela.seron@ufrontera.cl.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionRehabilitation is considered a key intervention in health care. Clinical registries, defined as an organized system that uses observational methods to collect information to assess specific outcomes in a defined population, can contribute to assessing the impact of the rehabilitation intervention. This review aims to identify and describe rehabilitation-specific registry systems with an emphasis on identifying outcomes that enable the assessment of vital areas and activities of daily living. EVIDENCE ACQUISITION: A systematic scoping review was conducted. A systematic search was conducted up to August 2022 in MEDLINE/PubMed, Embase, Cochrane Library, Epistemonikos, and other search resources. Studies related to rehabilitation registries presented data on people with health problems that could limit their functioning were selected. The inclusion of studies/clinical registries was not limited by methodological design, year of publication, country, or language. The unit of analysis was rehabilitation registries. The measurement instruments used to assess the outcomes were explored to estimate the domain assessed from the vital areas related to functioning and disability as described by the International Classification of Functioning, Disability and Health (ICF). The vital areas were classified according to activities of daily living (ADLs). EVIDENCE SYNTHESIS: Seventy-one registries in rehabilitation were identified. The registries included a median of 3 (IQR 2-5) assessment instruments designed to assess the impact of different rehabilitation programs. In total, 137 different assessment scales or instruments were identified. Each rehabilitation registry assessed 6 (IQR 2-8) domains of the ICF, and 15.4% of registries assessed all domains. The most assessed domain was "Mobility" (89.7%), and the least assessed was "General Tasks and Demands" (25.6%). In addition, 92.3% of rehabilitation registries assessed basic ADLs, 76.9% advanced ADLs, and 71.8% instrumental ADLs.

conclusionsAlthough clinical registries do not claim to directly assess the impact of rehabilitation programs on people's functioning according to the ICF framework, it was identified that a low percentage of them assessed the nine vital areas through different outcome assessment instruments. However, most rehabilitation registries directly or indirectly assess some basic, instrumental, and advanced ADLs. The findings of this review highlight the need to improve the design of clinical registries focused on assessing the impact of rehabilitation programs to assess people in all areas of their lives.

Indexed as

Activities of Daily LivingPersons with DisabilitiesHumansOutcome Assessment, Health Care

Identifiers

PMID37721783
PMCPMC10664814

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.