Evidence map›Paper›PMID 37712688›Full record

ArticleAging & mental health

Former dementia caregivers' high and low point narratives: what is remembered, and how is it shared?

Tara D Matta-Singh, Shubam Sharma, Talha Ali, Amanda Piechota, Anissa Abboud, Terri Fried, Joan K Monin, Emily L Mroz

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Article in Aging & mental health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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1citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

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3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

8 authors.

Tara D Matta-SinghSchool of Social Work, University of South Florida, Tampa, FL, USA.
Shubam SharmaDepartment of Psychological Science, Kennesaw State University, Kennesaw, GA, USA.
Talha AliDepartment of Community Health, Tufts University, Boston, MA, USA.
Amanda PiechotaDepartment of Social and Behavioral Sciences, Yale School of Public Health, New Haven, CT, USA.
Anissa AbboudDepartment of Health Policy, Yale School of Public Health, New Haven, CT, USA.
Terri FriedSection of Geriatrics, Department of Internal Medicine, Yale School of Medicine, New Haven, CT, USA.
Joan K MoninDepartment of Social and Behavioral Sciences, Yale School of Public Health, New Haven, CT, USA.
Emily L MrozSection of Geriatrics, Department of Internal Medicine, Yale School of Medicine, New Haven, CT, USA.

Funding

Yale Study Support Suite (YES3): Dashboard and Web Portal Software Supporting Research Workflow through integrated, customizable REDCap External ModulesP30AG021342 · NIA · YALE UNIVERSITY · PI Lauren Ferrante · 2002 to 2026
$37.9M
Yale Training Program in Geriatric Clinical Epidemiology and Aging-Related ResearchT32AG019134 · NIA · YALE UNIVERSITY · PI Terri R. Fried · 2001 to 2026
$7.5M
NIA NIH HHS P30 AG021342NIA NIH HHS T32 AG019134
6 · The paper itself

Abstract

objectivesTo characterize core themes conveyed by caregivers when sharing narratives of high and low caregiving points and to describe how caregivers structured these narratives.

methodsUsing consensual qualitative research and thematic analysis, high and low point narratives from 32 former caregivers of persons living with dementia were examined.

resultsHigh point narrative themes involved strengthening relationships with care partners, fulfillment derived from care, lighthearted moments, and fostering the care partners' joy and dignity. Low point narratives involved family conflict and lack of support, personal deficiencies, loss of the caregivers' 'pre-caregiving' life, health system failures, and alienation from their care partner. Across high and low points, caregivers' narratives were structured by three types of narrative elaborations; details unnecessary for factual recall but which enriched narrative sharing.

conclusionThemes across high and low point narratives encompassed relational issues, how caregiving shaped the caregiver's self-efficacy, and factors that made navigating caregiving easier or more difficult. Both high point and low point narration often involved describing positive aspects of caregiving (PAC). Narrative elaborations may be used by former caregivers to engage in deeper evaluation of their caregiving experiences. We consider how psychotherapeutic techniques can help former caregivers reframe maladaptive narratives, supporting their mental health.

Indexed as

CaregiversDementiaEmotionsHumansNarrationSelf Efficacymental healthNarrative identitynarrative therapyqualitative methods

Identifiers

PMID37712688
PMCPMC10922763

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.