ReviewFrontiers in public health2023
Health literacy in patients with pulmonary embolism: development and validation of the HeLP (Health Literacy in Pulmonary Embolism)-Questionnaire.
Review in Frontiers in public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Improving health literacy of patients with pulmonary embolism through evidence-based health information: a feasibility study.Frontiers in public health · 2026Trial
- Clinical application of third-generation dual-source CT-based dynamic imaging reconstruction for pulmonary embolism imaging.Journal of cardiothoracic surgery · 2025Trial
- An assessment of evidence to inform best practice for the communication of acute venous thromboembolism diagnosis: a scoping review.Research and practice in thrombosis and haemostasis · 2025Article
- Article
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Authors and funding
9 authors.
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Abstract
Background: Pulmonary embolism (PE) is a common cardiovascular disease and health literacy is necessary to deal with its consequences after the acute event. The aim of this study was to develop and validate a new questionnaire to measure PE-specific health literacy. Methods: A mixed-methods design with qualitative and quantitative elements was used in the development process. A literature review about health literacy concepts and instruments and interviews with patients with PE and clinicians were conducted. Quantitative analyses included factor analyses, item response theory with a graded partial credit model, and reliability analyses in different test and validation samples. Furthermore, convergent and known-groups validity and responsiveness were assessed. Results: The qualitative results supported a concept of PE-related health literacy with four main topics: dealing with PE-related health information, disease management, health-related selfcare, and social support. An initial item pool of 91 items was developed. Further interviews and an online survey with patients with PE ( Conclusion: The newly developed German HeLP Questionnaire comprises 23 items in four domains and showed good psychometric properties. Further evaluation of the questionnaire in different samples of patients with PE is needed.
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