Evidence map›Paper›PMID 37695476›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2024

Patient adherence to patient-reported outcome measure (PROM) completion in clinical care: current understanding and future recommendations.

Elizabeth Unni, Theresa Coles, Danielle C Lavallee, Jennifer Freel, Natasha Roberts, Kate Absolom

Abstract read
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Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers.

0numbers the graph read from it
0cells of the map it votes in
45citing papers in PubMed
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

45 citing papers in PubMed.

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  6. Implementation of patient-reported outcome measures in oncology practice: a communication-centered qualitative study on patient and healthcare professional perspectives.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Elizabeth UnniTouro College of Pharmacy, New York, NY, USA.
Theresa ColesDuke University School of Medicine, Durham, NC, USA.
Danielle C LavalleeMichael Smith Health Research BC, Vancouver, BC, Canada.
Jennifer FreelUniversity of Pittsburgh Medical Centre, Pittsburg, PA, USA.
Natasha RobertsThe University of Queensland Centre for Clinical Research, Herston, QLD, Australia. natasha.roberts@uq.edu.au.ORCID http://orcid.org/0000-0003-0534-8084
Kate AbsolomUniversity of Leeds, Leeds, UK.

Funding

Health Technology Assessment Programme RP-PG-0611-20008
6 · The paper itself

Abstract

backgroundPatient-reported outcome measures (PROMs) are increasingly being used as an assessment and monitoring tool in clinical practice. However, patient adherence to PROMs completions are typically not well documented or explained in published studies and reports. Through a collaboration between the International Society for Quality-of-Life Research (ISOQOL) Patient Engagement and QOL in Clinical Practice Special Interest Groups (SIGs) case studies were collated as a platform to explore how adherence can be evaluated and understood. Case studies were drawn from across a range of clinically and methodologically diverse PROMs activities.

resultsThe case studies identified that the influences on PROMs adherence vary. Key drivers include PROMs administeration methods within a service and wider system, patient capacity to engage and clinician engagement with PROMs information. It was identified that it is important to  evaluate  PROMs integration and adherence from multiple perspectives.

conclusionPROM completion rates are an important indicator of patient adherence. Future research prioritizing an understanding of PROMs completion rates by patients is needed.

Indexed as

Patient Reported Outcome MeasuresQuality of LifeHumansPatient CompliancePatient ParticipationAdherenceClinical practicePatient engagementPatient-reported outcome measures (PROMs)

Identifiers

PMID37695476
PMCPMC10784330

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.