ArticleEuropean psychiatry : the journal of the Association of European Psychiatrists2023
Autism care pathway in Europe.
Article in European psychiatry : the journal of the Association of European Psychiatrists, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- The pathway of early detection, diagnosis, and intervention for autistic children: a multi-center mixed method study.Pediatric research · 2026Article
- Does genetic testing impact stigma in autism: A scoping review.Journal of community genetics · 2026Review
- Clinical and Sociodemographic Characteristics Associated with Access to Early Intervention Programs for Infants with Prodromes of Autism.Journal of clinical medicine · 2026Article
- Global, Regional, and National Burden of Autism Spectrum Disorder: Trends and Decomposition Analysis From 1990 to 2021, and Projections for 2045.Actas espanolas de psiquiatria · 2025Article
- Bridging the gap: autism spectrum disorder in children in the United States and worldwide: a narrative review.Clinical and experimental pediatrics · 2025Article
- Alcohol use among populations with autism spectrum disorder: narrative systematic review.BJPsych open · 2025Review
- Editorial: Advancing interventions and therapeutic outcomes for autistic youth: a multidisciplinary perspective.Frontiers in child and adolescent psychiatry · 2025Article
- Bridging gaps in healthcare: child health services and specialist care collaboration for young children with autism and coexisting conditions.Frontiers in pediatrics · 2025Article
- Access and cost of services for autistic children and adults in Italy: a carers' perspective.Frontiers in psychiatry · 2024Article
- The European Brain Council Value of Treatment studies in depression and autism.European psychiatry : the journal of the Association of European Psychiatrists · 2023Article
Corrections and comments
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Authors and funding
15 authors.
Funding
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Abstract
backgroundAutism is a lifelong complex neurodevelopmental condition that affects brain development and behaviour with significant consequences for everyday life. Despite its personal, familial, and societal impact, Europe-wide harmonised guidelines are still lacking for early detection, diagnosis, and intervention, leading to an overall unsatisfactory autistic person and carer journey.
methodsThe care pathway for autistic children and adolescents was analysed in Italy, Spain and the UK from the perspective of carers (using a survey aimed at caregivers of autistic children 0-18 years old), the autistic community, and professionals in order to identify major barriers (treatment gaps) preventing carers from receiving information, support, and timely screening/diagnosis and intervention.
resultsAcross all three countries, analysis of the current care pathway showed: long waits from the time carers raised their first concerns about a child's development and/or behaviour until screening and confirmed diagnosis; delayed or no access to intervention once a diagnosis was confirmed; limited information about autism and how to access early detection services; and deficient support for families throughout the journey.
conclusionsThese findings call for policy harmonisation in Europe to shorten long wait times for diagnosis and intervention and therefore, improve autistic people and their families' journey experience and quality of life.
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