Evidence map›Paper›PMID 37689687›Full record

ArticleBMC palliative care2023

"I didn't know it was going to be like this.": unprepared for end-of-Life care, the experiences of care aides care in long-term care.

Laura Booi, Judith Sixsmith, Habib Chaudhury, Deborah O'connor, Claire Surr, Melanie Young, Andrew Sixsmith

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Laura BooiCentre for Dementia Research, School of Health, Leeds Beckett University, Leeds Beckett University, CL521 Calverley Building, City Campus, Leeds, LS1 3HE, UK. L.Booi@leedsbeckett.ac.uk.
Judith SixsmithSchool of Nursing and Health Sciences, University of Dundee, 11 Airlie Pl, Dundee, DD1 4HJ, UK.
Habib ChaudhuryDepartment of Gerontology, Simon Fraser University, Suite #2800, Harbour Centre, 515 W Hastings Street, Vancouver, BC, V6B 5K3, Canada.
Deborah O'connorSchool of Social Work, Centre for Research on Personhood in Dementia (CRPD), University of British Columbia, Jack Bell Building, 2080 West Mall, Co-Director, Vancouver, BC, V6T 1Z2, Canada.
Claire SurrCentre for Dementia Research, School of Health, Leeds Beckett University, Leeds Beckett University, CL521 Calverley Building, City Campus, Leeds, LS1 3HE, UK.
Melanie YoungKiwanis Village, Vancouver Island Health Authority, British Columbia, Canada.
Andrew SixsmithDepartment of Gerontology, Simon Fraser University, Suite #2800, Harbour Centre, 515 W Hastings Street, Vancouver, British Columbia, V6B 5K3, Canada.

Funding

Canadian Frailty Network IFP 2014 SP - 03
6 · The paper itself

Abstract

backgroundCare aides provide up to 70-90% of the direct care for residents in long-term care (LTC) and thus hold great potential in improving residents' quality of life and end-of-life (EoL) care experiences. Although the scope and necessity of the care aide role is predicted to increase in the future, there is a lack of understanding around their perceptions and experiences of delivering EoL care in LTC settings. The aim of this study was to gain an understanding of the perspectives, experiences, and working conditions of care aides delivering end-of-life care in LTC in a rural setting, within a high-income country.

methodsData were collected over ten months of fieldwork at one long-term care home in western Canada; semi-structured interviews (70 h) with 31 care aides; and observation (170 h). Data were analysed using Reflexive Thematic Analysis.

resultsTwo themes were identified: (i) the emotional toll that delivering this care takes on the care aids and; (ii) the need for healing and support among this workforce. Findings show that the vast majority of care aides reported feeling unprepared for the delivery of the complex care work required for good EoL care. Findings indicate that there are no adequate resources available for care aides' to support the mental and emotional aspects of their role in the delivery of EoL care in LTC. Participants shared unique stories of their own self-care traditions to support their grief, processing and emotional healing.

conclusionsTo facilitate the health and well-being of this essential workforce internationally, care aides need to have appropriate training and preparation for the complex care work required for good EoL care. It is essential that mechanisms in LTC become mandatory to support care aides' mental health and emotional well-being in this role. Implications for practice highlight the need for greater care and attention played on the part of the educational settings during their selection and acceptance process to train care aides to ensure they have previous experience and societal awareness of what care in LTC settings entails, especially regarding EoL experiences.

Indexed as

Long-Term CareTerminal CareCanadaEmotionsHumansQuality of LifeCare aidesDementiaEnd of lifeLong-term careMoral distressOlder adultsPalliative careQualitative researchWorking conditionsWork satisfaction

Identifiers

PMID37689687
PMCPMC10492357

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.