ArticleInternational journal of population data science2023
Developing a linked electronic health record derived data platform to support research into healthy ageing.
Article in International journal of population data science, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- Drug-Specific Associations of Angiotensin Receptor Blockers With Parkinson's Disease Risk in a Multicenter Electronic Health Record Cohort.Fundamental & clinical pharmacology · 2026Article
- Characterising the Beyond 50 Cohort: Preliminary Exploration of Physical and Psychosocial Health Factors and Substance Use Among a Cohort of Community Dwelling Adults Aged 50-70 Years.Drug and alcohol review · 2026Article
- Transforming Opioid Poisoning Surveillance Through Novel Technologies: Rationale and Methodological Protocol for Applying Natural Language Processing to Emergency Department Data.Drug and alcohol review · 2026Article
- National centre for healthy ageing data platform: Developing a core set of research data from hospital electronic health record systems: A modified Delphi approach.Health information management : journal of the Health Information Management Association of Australia · 2026Article
- Protocol for the 'Beyond 50' prospective observational cohort study: investigating the impact of physical and psychosocial factors on healthy ageing.BMC public health · 2025Observational
- Assessing the Impact of an Integrated Community Care Program on Unplanned Hospital and Emergency Department Representations: Interrupted Time Series Analysis.Journal of advanced nursing · 2025Observational
- Exploring Literature on Data Governance in the Health Care of Older Persons: Scoping Review.JMIR aging · 2025Article
- Feasibility of implementing a codesigned patient reported outcome measures (PROMs) collection system for older adults in acute and sub-acute hospital settings.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Dual-stream algorithms for dementia detection: Harnessing structured and unstructured electronic health record data, a novel approach to prevalence estimation.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Leveraging Administrative Health Databases to Address Health Challenges in Farming Populations: Scoping Review and Bibliometric Analysis (1975-2024).JMIR public health and surveillance · 2025Article
- Sharing data matters: exploring the attitudes of older consumers on an emerging healthy ageing data platform using electronic health records for research.BMJ health & care informatics · 2025Article
- Healthcare consumer acceptability of routine use of the EQ-5D-5L in clinical care: a cross-sectional survey.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Using a multi-stakeholder co-design process to develop a health service organisation-wide patient reported outcome measure collection system.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Exploring associations of greenery, air pollution and walkability with cardiometabolic health in people at midlife and beyond.Geriatrics & gerontology international · 2024Article
- Article
- Observational
- Data resource profile: Exploring freely accessible data describing wider determinants of health in England.International journal of population data science · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Digitalisation of Electronic Health Record (EHR) data has created unique opportunities for research. However, these data are routinely collected for operational purposes and so are not curated to the standard required for research. Harnessing such routine data at large scale allows efficient and long-term epidemiological and health services research. Objectives: To describe the establishment a linked EHR derived data platform in the National Centre for Healthy Ageing, Melbourne, Australia, aimed at enabling research targeting national health priority areas in ageing. Methods: Our approach incorporated: data validation, curation and warehousing to ensure quality and completeness; end-user engagement and consensus on the platform content; implementation of an artificial intelligence (AI) pipeline for extraction of text-based data items; early consumer involvement; and implementation of routine collection of patient reported outcome measures, in a multisite public health service. Results: Data for a cohort of >800,000 patients collected over a 10-year period have been curated within the platform's research data warehouse. So far 117 items have been identified as suitable for inclusion, from 11 research relevant datasets held within the health service EHR systems. Data access, extraction and release processes, guided by the Five Safes Framework, are being tested through project use-cases. A natural language processing (NLP) pipeline has been implemented and a framework for the routine collection and incorporation of patient reported outcome measures developed. Conclusions: We highlight the importance of establishing comprehensive processes for the foundations of a data platform utilising routine data not collected for research purposes. These robust foundations will facilitate future expansion through linkages to other datasets for the efficient and cost-effective study of health related to ageing at a large scale.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.