ArticleHealth SA = SA Gesondheid2023
A qualitative study on traditional healers' perceptions and management of epidermolysis bullosa.
Article in Health SA = SA Gesondheid, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed, 3 citations in OpenAlex.
- African Polyherbal Formulations for Type 2 Diabetes: A Systematic Review and Meta-Analysis of Efficacy, Mechanisms, and Therapeutic Potential.Plants (Basel, Switzerland) · 2026Review
- Traditional health practices in child care: Perceptions of caregivers in a township community.Journal of public health in Africa · 2026Article
- The Spectrum of Epidermolysis Bullosa in KwaZulu-Natal, South Africa.International journal of dermatology · 2025Observational
- Consensus statements for the biopsychosocial care of patients with epidermolysis bullosa South Africa: Part 2.Health SA = SA Gesondheid · 2025Article
- Consensus statements for the transdisciplinary care of patients with epidermolysis bullosa in South Africa: Part 1.Health SA = SA Gesondheid · 2025Article
- The impact, perceptions and needs of parents of children with epidermolysis bullosa.South African family practice : official journal of the South African Academy of Family Practice/Primary Care · 2024Article
- Lived experiences of patients with epidermolysis bullosa: A rare genetic skin disease.Health SA = SA Gesondheid · 2024Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Epidermolysis bullosa (EB) is a rare, incurable genodermatosis causing blisters that can result in multisystemic complications and death. Limited data exists on EB in South Africa. Research indicates that the majority of African patients consult traditional health practitioners (THPs) before seeking allopathic healthcare. Aim: This study aims to understand THPs belief systems, experiences, perceptions and management of EB patients and their families in the social and cultural context to improve the healthcare of EB patients. Setting: The study setting is Nelson Mandela School of Medicine, Durban, and Grey's hospital, Pietermaritzburg, KwaZulu-Natal. Methods: Qualitative in-depth interviews were conducted with 10 THPs. A non-probability, purposive sampling method was used. A two-site qualitative study was guided by interpretative phenomenological analysis. Guba's trustworthiness framework was used to ensure rigour. Results: Three male and seven female THPs were interviewed, including sangoma, inyanga and umthandazi. The integration presented five global themes: (1) THP practices, (2) perceptions of THP, (3) experiences of THP with patients with EB, (4) diagnosis and management plans of THP and (5) vision and role of THPs. There were multiple divergent perspectives among the THPs with the shared African worldview. Conclusion: Understanding THPs belief systems and therapeutic options is crucial for holistic patient management. Knowledge exchange can promote safe healthcare practices and facilitate collaboration between traditional and allopathic health practitioners. Contribution: This is the first study to explore THPs perceptions and practices regarding EB, a rare disease.
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