ArticleJournal of pain and symptom management2023
Navigating Stress in the Pediatric Intensive Care Unit Among Parents of Children with Severe Neurological Impairment.
Article in Journal of pain and symptom management, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Parental participation during children's vital sign monitoring in connection with surgery for congenital heart disease.Frontiers in pediatrics · 2026Article
- Children With Severe Neurologic Impairment and Their Families in the PICU: A Secondary Qualitative Analysis to Assess Clinician-Family Collaboration and Mutuality.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2025Article
- A photo-narrative intervention protocol for clinicians and parents of children with severe neurological impairment in the PICU.Contemporary clinical trials communications · 2025Article
- Experiences in Coping with Stress-A Qualitative Study of Family Caregivers of Children with Medical Complexity.Children (Basel, Switzerland) · 2024Article
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Authors and funding
7 authors.
Funding
Abstract
contextChildren with severe neurological impairment (SNI) make up nearly 50% of pediatric intensive care unit (PICU) admissions, yet little is known about their family caregiver experiences.
objectiveTo examine how parents and family caregivers of children with SNI navigate stress during PICU admissions.
methodsThis qualitative single-center study used content and thematic networks analysis to evaluate data from 1:1 semistructured interviews conducted around the time of PICU discharge with parents and family caregivers of children with SNI to examine ways they navigate stress. Proportions of participants reporting each theme and subtheme were calculated.
resultsFifteen parents/family caregivers of 15 children with SNI participated. Children were a median of 8 years old (range 1-21 years) and the majority had congenital/chromosomal conditions leading to their neurologic condition (80%, n = 12). 20% of participants were fathers (n = 3) and 45% (n = 7) reported identifying as having a minority racial background. Themes included 1) self-activation, and 2) letting go and the majority (80%, n = 12) of parents reported using both self-activation and letting go strategies. Within each of these themes, 5 subthemes illustrated ways parents navigate stress. The most reported subthemes were advocating and showing up (53%, n = 8) and being supported by compassionate clinicians (67%, n = 10). Themes/subthemes were used to create recommended language to guide clinicians in supporting parents.
conclusionParents and family caregivers of children with SNI employ various ways to navigate stress in the PICU. Themes from this study can be used to develop interventions that meet the psychosocial needs of parents and family caregivers of children with SNI during highly stressful times.
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