Evidence map›Paper›PMID 37665305›Full record

ArticleThe Journal of adolescent health : official publication of the Society for Adolescent Medicine2023

Nothing About Us Without Us: Involving Youth Living With HIV in a Virtual Advisory Board.

Autumn B Chidester, Catherine J Johnson, Hueylie Lin, Ruby Viera Corral, Susan Kools, Karen S Ingersoll, Rebecca A Dillingham, Ank E Nijhawan, Anna G Taranova, Barbara S Taylor

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In one paragraph

Article in The Journal of adolescent health : official publication of the Society for Adolescent Medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Autumn B ChidesterDivision of Infectious Diseases, Department of Medicine, University of Texas Health Science Center at San Antonio, San Antonio, Texas. Electronic address: autumnchidester.eras2023@gmail.com.
Catherine J JohnsonResearch and Information Management Department, University Hospital Systems in San Antonio, San Antonio, Texas.
Hueylie LinDivision of Infectious Diseases, Department of Medicine, University of Texas Health Science Center at San Antonio, San Antonio, Texas.
Ruby Viera CorralDivision of Infectious Diseases, Department of Medicine, University of Texas Health Science Center at San Antonio, San Antonio, Texas.
Susan KoolsSchool of Nursing, The University of Virginia, Charlottesville, Virginia.
Karen S IngersollProfessor of Psychiatry and Neurobehavioral Sciences, Department of Psychiatry and Neurobehavioral Sciences, Center for Behavioral Health and Technology, University of Virginia Health, Charlottesville, Virginia.
Rebecca A DillinghamDepartment of Medicine, The University of Virginia, Charlottesville, Virginia.
Ank E NijhawanDivision of Infectious Diseases, Department of Internal Medicine, University of Texas Southwestern Medical Center, Dallas, Texas.
Anna G TaranovaDepartment of Research and Healthcare Innovation, University Hospital Systems in San Antonio, San Antonio, Texas.
Barbara S TaylorProfessor of Infectious Diseases, Assistant Dean for the MD/MPH Program, Division of Infectious Diseases, Department of Medicine, University of Texas Health Science Center at San Antonio, San Antonio, Texas.

Funding

PositiveLinks for Youth and Emerging Adults (PL4Y): Adapting a multimodal evidence-based mHealth intervention to increase engagement in HIV care in the Southern USR34MH122332 · NIMH · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI TAYLOR, BARBARA S · 2020 to 2022
$730k
NIMH NIH HHS R34 MH122332
6 · The paper itself

Abstract

purposeWe adapted a traditional community advisory board to the needs of youth living with HIV (YLWH), resulting in a virtual, asynchronous, and anonymous youth advisory board (YAB). The YAB's evolution fostered participation during the adaptation of an HIV care mobile health application.

methodsYAB members, comprised of YLWH in South Texas, engaged in the mobile application's formative evaluation, adaptation, and pilot implementation. We collected feedback via surveys and interviews, analyzed and integrated responses, tracked participation and YAB adaptations, and performed content analysis.

resultsDriven by feedback, the YAB evolved from in-person group meetings to the current iteration. We administered five surveys, and YAB members provided feedback on communication preferences; mobile app elements; privacy and confidentiality; and virtual support groups. DISCUSSION: Our adaptive process highlights three primary drivers of innovation: COVID-19 risk reduction, asynchrony, anonymity. Our success in maintaining YAB engagement suggests the adapted model could be employed to support youth input in other contexts.

Indexed as

HIV InfectionsMobile ApplicationsTelemedicineAdolescentCommunicationHumansPrivacyCommunity advisory boardCommunity engagementHIVIntervention developmentmHealthYouth advisory boardYouth living with HIV

Identifiers

PMID37665305
PMCPMC11140764

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.