Evidence map›Paper›PMID 37662692›Full record

ArticlePEC innovation2023

Understanding parents uncertainty sources and management strategies while caring for a child diagnosed with a hematologic cancer.

Easton N Wollney, Carma L Bylund, Amanda L Kastrinos, Gemme Campbell-Salome, Maria Sae-Hau, Elisa S Weiss, Carla L Fisher

Open access · goldAbstract read
In one paragraph

Article in PEC innovation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
8.7field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 15 citations in OpenAlex.

  1. Article
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  7. Supportive care needs of parents caring for children with leukemia: a latent profile analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 1 country.

Easton N WollneyDepartment of Health Outcomes & Biomedical Informatics, University of Florida, Gainesville, FL, United States of America.
Carma L BylundDepartment of Health Outcomes & Biomedical Informatics, University of Florida, Gainesville, FL, United States of America.
Amanda L KastrinosDepartment of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, United States of America.
Gemme Campbell-SalomeGenomic Medicine Institute, Department of Population Health Sciences, Geisinger, Danville, PA, United States of America.
Maria Sae-HauThe Leukemia & Lymphoma Society, Rye Brook, NY, United States of America.
Elisa S WeissThe Leukemia & Lymphoma Society, Rye Brook, NY, United States of America.
Carla L FisherDepartment of Health Outcomes & Biomedical Informatics, University of Florida, Gainesville, FL, United States of America.
Leukemia and Lymphoma Society · USUniversity of Florida Health · USMemorial Sloan Kettering Cancer Center · USUF Health Cancer Center

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI Nicholas D Socci · 1985 to 2026
$347.4M
NCI NIH HHS P30 CA008748
6 · The paper itself

Abstract

Rationale: Parents of a child or adolescent (CA) or young adult (YA) diagnosed with a hematologic cancer often face uncertainty. Managing uncertainty is critical to reduce the psychosocial burden of illness-related stressors. Objective: This study sought to identify: 1) sources of uncertainty among parents of a child diagnosed with a hematologic cancer, 2) strategies used by parents to manage uncertainty, and 3) clinicians' responses to parents' online information-seeking approach to managing uncertainty. Methods: Parents of CAs/YAs diagnosed with a hematologic cancer within the past 1-18 months and living in the U.S. participated in an in-depth, semi-structured phone interview ( Results: Parents reported Conclusion: Parents described struggling with uncertainty across the cancer continuum (from primary treatment to survivorship). Parents' psychosocial health may benefit from individual and systems level interventions that help address and manage uncertainty, especially interventions focusing on parent caregiver-clinician communication.

Indexed as

Blood cancer(s)CaregiversHealth communicationPsycho-oncologyQualitative researchUncertainty

Identifiers

PMID37662692
PMCPMC10468798
OpenAlexW4385690892

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.