ArticleFrontiers in psychiatry2023
Combating stigma in autism research through centering autistic voices: a co-interview guide for qualitative research.
Article in Frontiers in psychiatry, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 17 citations in OpenAlex.
- Experiencing Independence: Perspectives from Autistic Adults.Journal of autism and developmental disorders · 2026Article
- The Architectural Needs and Preferences of Autistic People Versus Gerontological Residential Care Facility Design Practices.Autism in adulthood · 2026Article
- "Everyone Uses Different Skills and Resources to Live Independently": A Brief Report on Autistic Young Adults' Perspectives on Independence and Daily Living Skills.Journal of autism and developmental disorders · 2025Article
- Self-Set Goals: Autistic Adults Facilitating Their Self-Determination Through Digitally Mediated Social Stories.Autism in adulthood · 2025Article
- Methodological insights from the inside: developing autistic-friendly interviewing in a group interview space.Frontiers in psychiatry · 2025Article
- Article
- Eight principles of neuro-inclusion; an autistic perspective on innovating inclusive research methods.Frontiers in psychology · 2024Article
- The Lived Experiences of Autistic Mothers: A Systematic Review and Thematic Synthesis of Qualitative Evidence.Autism & developmental language impairmentsReview
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
As autism has gained increased attention in the past few decades, autistic advocates have adopted the phrase "Nothing about us without us," illustrating the idea that autistic people should be centered in all conversations regarding autism. However, in a large portion of autism research, autistic people are still not meaningfully engaged throughout the research process, leading to continued stigma in research through biased methods. Thus, stigma about autism influences not only the content of autism research, but the ways in which neurotypical people conduct research alongside (or without) autistic people, ultimately resulting in less valid conclusions or research that actively harms the autistic community. One way to address this stigma is through involving autistic individuals as equal partners in the research process, such as by including autistic co-interviewers in qualitative studies of autistic people. In this perspectives piece, we will highlight the benefits of participatory research practices within qualitative research. Furthermore, we will outline methods for conducting co-interviews with autistic research partners and share insights from our experiences implementing this practice. We hope this piece provides researchers the practical resources and inspiration to continue working toward decreasing the stigma surrounding autism in research spaces.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.