Evidence map›Paper›PMID 37650571›Full record

ReviewDevelopmental medicine and child neurology2024

Cerebral palsy pain instruments: Recommended tools for clinical research studies by the National Institute of Neurological Disorders and Stroke Cerebral Palsy Common Data Elements project.

Verónica Schiariti, Angela Shierk, Elaine E Stashinko, Theresa Sukal-Moulton, Robin S Feldman, Clara Aman, M Carolina Mendoza-Puccini, Joline E Brandenburg, National Institute of Neurological Disorders and Stroke Cerebral Palsy Common Data Elements Oversight Committee

Open access · hybridAbstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Developmental medicine and child neurology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
1.8field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 8 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 7 institutions in 2 countries.

Verónica SchiaritiDivision of Medical Sciences, University of Victoria, Victoria, BC, Canada.ORCID https://orcid.org/0000-0001-9148-4159
Angela ShierkScottish Rite for Children, Texas Woman's University, Dallas, TX, USA.ORCID https://orcid.org/0000-0001-9813-6659
Elaine E StashinkoJohns Hopkins School of Nursing and School of Medicine, Baltimore, MD, USA.
Theresa Sukal-MoultonDepartment of Physical Therapy and Human Movement Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA.ORCID https://orcid.org/0000-0001-6624-1999
Robin S FeldmanThe Emmes Company, Rockville, MD, USA.ORCID https://orcid.org/0000-0001-8779-6416
Clara AmanThe Emmes Company, Rockville, MD, USA.
M Carolina Mendoza-PucciniDivision of Clinical Research, National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health, Bethesda, MD, USA.ORCID https://orcid.org/0000-0002-3241-9303
Joline E BrandenburgDepartment of Physical Medicine and Rehabilitation, Mayo Clinic, Rochester, MN, USA.ORCID https://orcid.org/0000-0002-7932-9225
National Institute of Neurological Disorders and Stroke Cerebral Palsy Common Data Elements Oversight Committee
Emmes (United States) · USJohns Hopkins University · USMayo Clinic in Arizona · USNational Institutes of Health · USNorthwestern University · USTexas Woman's University · USUniversity of Victoria · CA

Funding

NINDS CENTER FOR CLINICAL TRIAL RESOURCES75N95022C00041 · NIDA · THE EMMES COMPANY, LLC · PI HEFNER, KATHRYN · 2022 to 2025
$7.1M
NIDA NIH HHS 75N95022C00041NIDA NIH HHS HHSN271201700064CNINDS NIH HHS 75N95022C00041
6 · The paper itself

Abstract

aimThis study describes the process of updating the cerebral palsy (CP) common data elements (CDEs), specifically identifying tools that capture the impact of chronic pain on children's functioning.

methodThrough a partnership between the American Academy for Cerebral Palsy and Developmental Medicine and the National Institute of Neurological Disorders and Stroke (NINDS), the CP CDEs were developed as data standards for clinical research in neuroscience. Chronic pain was underrepresented in the NINDS CP CDEs version 1.0. A multi-step methodology was applied by an interdisciplinary professional team. Following an adapted CP chronic pain tools' rating system, and a review of psychometric properties, clinical utility, and compliance with inclusion/exclusion criteria, a set of recommended pain tools was posted online for external public comment in May 2022.

resultsFifteen chronic pain tools met inclusion criteria, representing constructs across all components of the International Classification of Functioning, Disability and Health.

interpretationThis paper describes the first condition-specific pain CDEs for a pediatric population. The proposed set of chronic pain tools complement and enhance the applicability of the existing pediatric CP CDEs. The novel CP CDE pain tools harmonize the assessment of chronic pain, addressing not only intensity of chronic pain, but also the functional impact of experiencing it in everyday activities.

Indexed as

Biomedical ResearchCerebral PalsyChronic PainChildCommon Data ElementsHumansNational Institute of Neurological Disorders and Stroke (U.S.)United States

Identifiers

PMID37650571
PMCPMC10902183
OpenAlexW4386305988

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.