ArticleBJPsych open2023
The development and validation of the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia).
Article in BJPsych open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- The sociological stakes of attitudes toward the families and care of older adults with dementia.Sociological forum (Randolph, N.J.) · 2026Article
- Spontaneous conversations as data in young-onset dementia research: a qualitative study.Frontiers in dementia · 2026Article
- An International Validation of the Stigma Impact Scale With People With Dementia.International journal of geriatric psychiatry · 2025Article
- Factors associated with dementia-related stigma in British adolescents.BMC public health · 2024Article
- Development of the dementia attitude scale focusing on well-being.Frontiers in psychology · 2024Article
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Authors and funding
15 authors.
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Abstract
backgroundThe recent World Health Organization (WHO) blueprint for dementia research and Lancet Commission on ending stigma and discrimination in mental health has identified a gap around dementia-related measures of stigma and discrimination that can be used in different cultural, language and regional contexts.
aimsWe aimed to characterise experiences of discrimination, and report initial psychometric properties of a new tool to capture these experiences, among a global sample of people living with dementia.
methodWe analysed data from 704 people living with dementia who took part in a global survey from 33 different countries and territories. Psychometric properties were examined, including internal consistency and construct validity.
resultsA total of 83% of participants reported discrimination in one or more areas of life, and this was similar across WHO Regions. The exploratory factor analysis factor loadings and scree plot supported a unidimensional structure for the Discrimination and Stigma Scale Ultra Short for People Living with Dementia (DISCUS-Dementia). The instrument demonstrated excellent internal consistency, with most of the construct validity hypotheses being confirmed and qualitative responses demonstrating face validity.
conclusionsOur analyses suggest that the DISCUS-Dementia performs well with a global sample of people living with dementia. This scale can be integrated into large-scale studies to understand factors associated with stigma and discrimination. It can also provide an opportunity for a structured discussion around stigma and discrimination experiences important to people living with dementia, as well as planning psychosocial services and initiatives to reduce stigma and discrimination.
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