Evidence map›Paper›PMID 37646159›Full record

ReviewCirculation2023

Principles for Health Information Collection, Sharing, and Use: A Policy Statement From the American Heart Association.

Kayte Spector-Bagdady, Antonis A Armoundas, Rima Arnaout, Jennifer L Hall, Brooke Yeager McSwain, Joshua W Knowles, W Nicholson Price, Danda B Rawat, Barbara Riegel, Tracy Y Wang and 3 more

Open access · bronzeAbstract readReview
In one paragraph

Review in Circulation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 1 pooled it
7.5field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.

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  20. Impact of Social Determinants of Health on Cardiovascular Disease.Journal of the American Heart Association · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 5 institutions in 3 countries.

Kayte Spector-Bagdady
Antonis A Armoundas
Rima Arnaout
Jennifer L Hall
Brooke Yeager McSwain
Joshua W Knowles
W Nicholson Price
Danda B Rawat
Barbara Riegel
Tracy Y Wang
Kevin Wiley
Mina K Chung
American Heart Association Advocacy Coordinating Committee
Brooke · GBIntas Pharmaceuticals (India) · INJohn Tracy Clinic · USJohn Wiley & Sons (United States) · USKnowles (United States) · US

Funding

Project 3 Genes to Omics-Informed Drugs: Drug Repositioning and Testing to Prevent AF ProgressionsP01HL158502 · NHLBI · CLEVELAND CLINIC LERNER COM-CWRU · PI Mina Kay Chung · 2022 to 2026
$16.9M
Toward efficient performance for deep learning on medical imagingR01HL150394 · NHLBI · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Rima Arnaout · 2020 to 2026
$6.2M
RADIOMIC APPROACHES TO IMPROVE TARGETING FOR ATRIAL FIBRILLATION CATHETER ABLATIONR01HL158071 · NHLBI · CLEVELAND CLINIC LERNER COM-CWRU · PI BARNARD, JOHN, CHUNG, MINA KAY · 2021 to 2024
$2.9M
BLRD VA IK6 BX006185NHLBI NIH HHS P01 HL158502NHLBI NIH HHS R01 HL150394NHLBI NIH HHS R01 HL158071
6 · The paper itself

Abstract

The evolution of the electronic health record, combined with advances in data curation and analytic technologies, increasingly enables data sharing and harmonization. Advances in the analysis of health-related and health-proxy information have already accelerated research discoveries and improved patient care. This American Heart Association policy statement discusses how broad data sharing can be an enabling driver of progress by providing data to develop, test, and benchmark innovative methods, scalable insights, and potential new paradigms for data storage and workflow. Along with these advances come concerns about the sensitive nature of some health data, equity considerations about the involvement of historically excluded communities, and the complex intersection of laws attempting to govern behavior. Data-sharing principles are therefore necessary across a wide swath of entities, including parties who collect health information, funders, researchers, patients, legislatures, commercial companies, and regulatory departments and agencies. This policy statement outlines some of the key equity and legal background relevant to health data sharing and responsible management. It then articulates principles that will guide the American Heart Association's engagement in public policy related to data collection, sharing, and use to continue to inform its work across the research enterprise, as well as specific examples of how these principles might be applied in the policy landscape. The goal of these principles is to improve policy to support the use or reuse of health information in ways that are respectful of patients and research participants, equitable in impact in terms of both risks and potential benefits, and beneficial across broad and demographically diverse communities in the United States.

Indexed as

American Heart AssociationInformation DisseminationData CollectionHumansUnited StatesAHA Scientific Statementsconsumer health informationethics, researchpolicysocial justicetechnology

Identifiers

PMID37646159
PMCPMC10912036
OpenAlexW4386272230

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.