Evidence map›Paper›PMID 37645268›Full record

ArticleOpen research Europe2022

FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research.

Celia Alvarez-Romero, Alicia Martínez-García, A Anil Sinaci, Mert Gencturk, Eva Méndez, Tony Hernández-Pérez, Rosa Liperoti, Carmen Angioletti, Matthias Löbe, Nagarajan Ganapathy and 27 more

Abstract read
In one paragraph

Article in Open research Europe, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
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  7. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

37 authors.

Celia Alvarez-RomeroComputational Health Informatics Group, Institute of Biomedicine of Seville, IBiS / Virgen del Rocío University Hospital / CSIC / University of Seville, Seville, 41013, Spain.ORCID https://orcid.org/0000-0001-8647-9515
Alicia Martínez-GarcíaComputational Health Informatics Group, Institute of Biomedicine of Seville, IBiS / Virgen del Rocío University Hospital / CSIC / University of Seville, Seville, 41013, Spain.
A Anil SinaciSRDC Software Research Development and Consultancy Corporation, Ankara, 06800, Turkey.ORCID https://orcid.org/0000-0003-4397-3382
Mert GencturkSRDC Software Research Development and Consultancy Corporation, Ankara, 06800, Turkey.ORCID https://orcid.org/0000-0003-2697-5722
Eva MéndezDept. of Library & Inf Sci. Universidad Carlos III de Madrid, Getafe, 28903, Spain.ORCID https://orcid.org/0000-0002-5337-4722
Tony Hernández-PérezDept. of Library & Inf Sci. Universidad Carlos III de Madrid, Getafe, 28903, Spain.ORCID https://orcid.org/0000-0001-8404-9247
Rosa LiperotiDepartment of Geriatric and Orthopedic Sciences, Catholic University of Sacred Heart, Roma, 00168, Italy.
Carmen AngiolettiDepartment of Geriatric and Orthopedic Sciences, Catholic University of Sacred Heart, Roma, 00168, Italy.ORCID https://orcid.org/0000-0002-0341-1679
Matthias LöbeInstitute for Medical Informatics (IMISE), University of Leipzig, Leipzig, 04107, Germany.ORCID https://orcid.org/0000-0002-2344-0426
Nagarajan GanapathyPLRI Institute for Medical Informatics of TU Braunschweig and Hannover Medical School, Braunschweig, 38106, Germany.ORCID https://orcid.org/0000-0002-3743-5388
Thomas M DesernoPLRI Institute for Medical Informatics of TU Braunschweig and Hannover Medical School, Braunschweig, 38106, Germany.
Marta AlmadaUcibio Requimte, Faculty of Pharmacy University of Porto. Porto4Ageing, Porto, 4050-313, Portugal.ORCID https://orcid.org/0000-0001-6575-1698
Elisio CostaUcibio Requimte, Faculty of Pharmacy University of Porto. Porto4Ageing, Porto, 4050-313, Portugal.ORCID https://orcid.org/0000-0003-1158-1480
Catherine ChronakiHL7 Europe Foundation, Brussels, 1000, Belgium.ORCID https://orcid.org/0000-0001-6638-8448
Giorgio CangioliHL7 Europe Foundation, Brussels, 1000, Belgium.
Ronald CornetAmsterdam UMC, University of Amsterdam, Medical Informatics, Amsterdam Public Health, Amsterdam, 1105AZ, The Netherlands.ORCID https://orcid.org/0000-0002-1704-5980
Beatriz Poblador-PlouEpiChron Research Group, Aragon Health Sciences Institute (IACS), IIS Aragón, Miguel Servet University Hospital, Zaragoza, 50009, Spain.ORCID https://orcid.org/0000-0002-5119-5093
Jonás Carmona-PírezEpiChron Research Group, Aragon Health Sciences Institute (IACS), IIS Aragón, Miguel Servet University Hospital, Zaragoza, 50009, Spain.ORCID https://orcid.org/0000-0002-6268-8803
Antonio Gimeno-MiguelEpiChron Research Group, Aragon Health Sciences Institute (IACS), IIS Aragón, Miguel Servet University Hospital, Zaragoza, 50009, Spain.
Antonio Poncel-FalcóEpiChron Research Group, Aragon Health Sciences Institute (IACS), IIS Aragón, Aragon Health Service, Zaragoza, 50009, Spain.
Alexandra Prados-TorresEpiChron Research Group, Aragon Health Sciences Institute (IACS), IIS Aragón, Miguel Servet University Hospital, Zaragoza, 50009, Spain.
Tomi KovacevicMedical Faculty University of Novi Sad, Novi Sad, 21000, Serbia.
Bojan ZaricMedical Faculty University of Novi Sad, Novi Sad, 21000, Serbia.ORCID https://orcid.org/0000-0003-3215-8390
Darijo BokanInstitute for Pulmonary Diseases of Vojvodina, Sremska Kamenica, 21204, Serbia.
Sanja HromisMedical Faculty University of Novi Sad, Novi Sad, 21000, Serbia.
Jelena Djekic MalbasaMedical Faculty University of Novi Sad, Novi Sad, 21000, Serbia.
Carlos Rapallo FernándezJ&A Garrigues, S.L.P., Seville, 41013, Spain.
Teresa Velázquez FernándezJ&A Garrigues, S.L.P., Seville, 41013, Spain.
Jessica RochatUniversity of Geneva and University hospitals of Geneva, Geneva, 1211, Switzerland.
Christophe Gaudet-BlavignacUniversity of Geneva and University hospitals of Geneva, Geneva, 1211, Switzerland.ORCID https://orcid.org/0000-0001-6527-5898
Christian LovisUniversity of Geneva and University hospitals of Geneva, Geneva, 1211, Switzerland.ORCID https://orcid.org/0000-0002-2681-8076
Patrick WeberNice Computing SA Le Mont-sur-Lausanne, Le Mont-sur-Lausanne, 1052, Switzerland.
Miriam QuinteroAtos Research and Innovation - ARI. Atos IT., Madrid, 28037, Spain.
Manuel M Perez-PerezAtos Research and Innovation - ARI. Atos IT., Madrid, 28037, Spain.
Kevin AshleyDigital Curation Centre, University of Edinburgh, Argyle House, Edinburgh, EH3 9DR, UK.ORCID https://orcid.org/0000-0001-7546-5978
Laurence HortonDigital Curation Centre, University of Glasgow, Glasgow, G12 8QQ, UK.ORCID https://orcid.org/0000-0003-2742-6434
Carlos Luis Parra CalderónComputational Health Informatics Group, Institute of Biomedicine of Seville, IBiS / Virgen del Rocío University Hospital / CSIC / University of Seville, Seville, 41013, Spain.ORCID https://orcid.org/0000-0003-2609-575X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators' performance.

Indexed as

data reusedata sharingFAIR principleshealth datahealth researchhealth research data managementHL7 FHIRmachine learning.open scienceprivacy-preserving computing

Identifiers

PMID37645268
PMCPMC10446092

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.