Evidence map›Paper›PMID 37645200›Full record

ArticleOpen research Europe2021

An agenda-setting paper on data sharing platforms: euCanSHare workshop.

Thijs Devriendt, Clemens Ammann, Folkert W Asselbergs, Alexander Bernier, Rodrigo Costas, Matthias G Friedrich, Josep L Gelpi, Marjo-Riitta Jarvelin, Kari Kuulasmaa, Karim Lekadir and 11 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Open research Europe, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Thijs DevriendtCentre for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.ORCID https://orcid.org/0000-0002-3540-1096
Clemens AmmannWorking Group on Cardiovascular Magnetic Resonance, Experimental and Clinical Research Center, a joint cooperation between the Charité - Universitätsmedizin Berlin and the Max-Delbrück-Center for Molecular Medicine, Berlin, Germany.ORCID https://orcid.org/0000-0002-5962-4008
Folkert W AsselbergsDepartment of Cardiology, Division Heart & Lungs, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.ORCID https://orcid.org/0000-0002-1692-8669
Alexander BernierCentre of Genomics and Policy, Faculty of Medicine, McGill University, Montreal, Canada.
Rodrigo CostasCentre for Science and Technology Studies (CWTS), Leiden University, Leiden, The Netherlands.
Matthias G FriedrichDepartments of Medicine and Diagnostic Radiology, McGill University Health Centre, Montreal, Canada.
Josep L GelpiDepartment of Biochemistry and Molecular Biomedicine, University of Barcelona, Barcelona, Spain.
Marjo-Riitta JarvelinDepartment of Life Sciences, College of Health and Life Sciences, Brunel University London, London, UK.
Kari KuulasmaaNational Institute for Health and Welfare, Helsinki, Finland.ORCID https://orcid.org/0000-0003-2165-1411
Karim LekadirArtificial Intelligence in Medicine Lab (BCN-AIM), Department of Mathematics and Computer Science, University of Barcelona, Barcelona, Spain.
Michaela Th MayrhoferBBMRI, Graz, Austria.
Vaclav PapezInstitute of Health Informatics, University College London, London, UK.ORCID https://orcid.org/0000-0002-2123-7993
Gerard PasterkampDepartment of Clinical Diagnostics Laboratories, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.
Steffen E PetersenHealth Data Research UK, London, UK.ORCID https://orcid.org/0000-0003-4622-5160
Carsten Oliver SchmidtInstitute for Community Medicine, Department SHIP-KEF, Greifswald University Medical Center, Greifswald, Germany.
Jeanette Schulz-MengerWorking Group on Cardiovascular Magnetic Resonance, Experimental and Clinical Research Center, a joint cooperation between the Charité - Universitätsmedizin Berlin and the Max-Delbrück-Center for Molecular Medicine, Berlin, Germany.
Stefan SöderbergDepartment of Public Health and Clinical Medicine, Heart Centre, Umeå University, Umeå, Sweden.
Mahsa ShabaniMETAMEDICA, Department of Law and Criminology, Ghent University, Ghent, Belgium.
Giovanni VeronesiResearch Center in Epidemiology and Preventive Medicine (EPIMED), Department of Medicine and Surgery, University of Insubria in Varese, Varese, Italy.ORCID https://orcid.org/0000-0002-4119-6615
Darian Steven ViezzerWorking Group on Cardiovascular Magnetic Resonance, Experimental and Clinical Research Center, a joint cooperation between the Charité - Universitätsmedizin Berlin and the Max-Delbrück-Center for Molecular Medicine, Berlin, Germany.ORCID https://orcid.org/0000-0002-1599-3557
Pascal BorryCentre for Biomedical Ethics and Law, Department of Public Health and Primary Care, KU Leuven, Leuven, Belgium.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Various data sharing platforms are being developed to enhance the sharing of cohort data by addressing the fragmented state of data storage and access systems. However, policy challenges in several domains remain unresolved. The euCanSHare workshop was organized to identify and discuss these challenges and to set the future research agenda. Concerns over the multiplicity and long-term sustainability of platforms, lack of resources, access of commercial parties to medical data, credit and recognition mechanisms in academia and the organization of data access committees are outlined. Within these areas, solutions need to be devised to ensure an optimal functioning of platforms.

Indexed as

data infrastructuredata sharingincentivesopen sciencescience policy

Identifiers

PMID37645200
PMCPMC10445835

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.