Evidence map›Paper›PMID 37638227›Full record

ArticleContemporary clinical trials communications2023

Aging with Pride: Innovations in Dementia Empowerment and Action (IDEA).

Karen I Fredriksen-Goldsen, Brittany R Jones, Charles Hoy-Ellis, Hyun-Jun Kim, Charles A Emlet, David La Fazia, Glenise McKenzie, Ryan Petros, Linda Teri

Open access · goldAbstract read
In one paragraph

Article in Contemporary clinical trials communications, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.6field-weighted citation impact, top 18% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

  1. Trial
  2. Using community engagement withContemporary clinical trials communications · 2024
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 1 country.

Karen I Fredriksen-GoldsenUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
Brittany R JonesUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
Charles Hoy-EllisUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
Hyun-Jun KimUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
Charles A EmletUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
David La FaziaUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
Glenise McKenzieOregon Health & Sciences University, School of Nursing, 3181 S.W. Sam Jackson Park Road, Portland, OR, 97239, USA.
Ryan PetrosUniversity of Washington, School of Social Work, 1410 15th Ave NE, Seattle, WA, 98105, USA.
Linda TeriUniversity of Washington, School of Nursing, 1410 NE Campus Parkway, Seattle, WA, 98195, USA.
University of Washington · USOregon Health & Science University · US

Funding

Older Adults Living with Alzheimer's Disease and their Caregivers: Testing an Evidence-Based Intervention for Underserved PopulationsR01AG055488 · NIA · UNIVERSITY OF WASHINGTON · PI FREDRIKSEN-GOLDSEN, KAREN ILENE, TERI, LINDA · 2017 to 2021
$3.7M
NIA NIH HHS R01 AG055488
6 · The paper itself

Abstract

Background: Sexual and gender minority (SGM) older adults and their care partners, compared to the general population, face unique vulnerabilities that exacerbate living with dementia, including elevated disparities in comorbidities, social isolation, and structural inequities, such as discrimination and lack of access to supports. Methods: This paper describes the virtual adaptation process of the first-ever randomized controlled clinical trial intervention, Aging with Pride: Innovations in Dementia Empowerment and Action (IDEA), that was designed for SGM older adults living with dementia and their care partners and built upon the foundation of RDAD and NHAS. Results: The virtual adaptation of IDEA was guided by the goals of accessibility, quality, ease of delivery, sustainability, and cultural relevance. The implementation required the development of a HIPPA-compliant online virtual platform, coach and participant virtual training, and modification of necessary intervention elements and materials, as needed. Based on the preliminary findings, the participants and intervention coaches responded well to the virtual adaptation of IDEA. When comparing to in-person delivery, the virtual delivery decreased attrition among both intervention participants and coaches. Discussion: The virtual adaptation of the IDEA intervention resulted in preliminary, unexpected, yet potentially important benefits, including the ability to expand the reach of the intervention and decreased attrition. Virtual interventions are an emerging field for people living with dementia and their care partners and additional systematic research is needed to fully assess the benefits and limitations as well as to evaluate if specific subgroups are better served by differing delivery modalities.

Indexed as

Cultural adaptationDementiaInterventionLGBTRCTVirtual

Identifiers

PMID37638227
PMCPMC10448412
OpenAlexW4382722822

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.