Evidence map›Paper›PMID 37637213›Full record

ArticleInternational journal of integrated care

Builder, Expert, Disruptor, Leader: The Many Roles of People with Lived Experience.

Robin Miller, Nieves Ehrenberg, Caroline Jackson, Heather Penwarden, Viktoria Stein, Wilma van der Vlegel-Brouwer, Anne Wojtak

Abstract read
In one paragraph

Article in International journal of integrated care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Just a story? Leadership, lived experience and integrated care.Health expectations : an international journal of public participation in health care and health policy · 2024
    Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Robin MillerUniversity of Birmingham, United Kingdom.ORCID https://orcid.org/0000-0003-2646-5589
Nieves EhrenbergVM Partners Integrating Health and Care, Portugal.ORCID https://orcid.org/0000-0002-0760-9711
Caroline JacksonUniversity of Birmingham, United Kingdom.ORCID https://orcid.org/0000-0002-4459-9153
Heather PenwardenDementia Friendly Honiton & Public Governor Royal Devon NHS Foundation Trust, United Kingdom.ORCID https://orcid.org/0009-0007-5845-6835
Viktoria SteinLeiden University Medical Centre, Netherlands.ORCID https://orcid.org/0000-0002-6225-6226
Wilma van der Vlegel-BrouwerSevenSenses Institute, Netherlands.ORCID https://orcid.org/0000-0001-5912-4145
Anne WojtakUniversity of Toronto, Canada.ORCID https://orcid.org/0009-0006-5830-0681

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

People with lived experience of health and social care, including family carers, should be at the heart of integrated care policy and practice. One of the challenges to achieving such co-production is insufficient clarity and limited understanding of the different roles that people with lived experience are asked or choose to undertake. Following research and workshops, four roles have been identified - community builder, improvement expert, disruptor/advocate, and citizen leader. Recognising the distinct contribution and demands of these roles will enable appropriate support and development for people with lived experience and the professionals and managers with whom they collaborate.

Indexed as

citizen leaderco-productionlived experience

Identifiers

PMID37637213
PMCPMC10453958

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.