Evidence map›Paper›PMID 37628354›Full record

ArticleChildren (Basel, Switzerland)2023

"Making Data the Drug": A Pragmatic Pilot Feasibility Randomized Crossover Trial of Data Visualization as an Intervention for Pediatric Chronic Pain.

Katelynn E Boerner, Unma Desai, Jessica Luu, Karon E MacLean, Tamara Munzner, Haley Foladare, Jane Shen, Javed Gill, Tim F Oberlander

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Katelynn E BoernerDepartment of Pediatrics, BC Children's Hospital Research Institute, University of British Columbia, Vancouver, BC V6H 3V4, Canada.ORCID 0000-0003-1652-4813
Unma DesaiDepartment of Computer Science, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.ORCID 0000-0003-1908-0162
Jessica LuuDepartment of Pediatrics, BC Children's Hospital Research Institute, University of British Columbia, Vancouver, BC V6H 3V4, Canada.
Karon E MacLeanDepartment of Computer Science, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
Tamara MunznerDepartment of Computer Science, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
Haley FoladareDepartment of Computer Science, University of British Columbia, Vancouver, BC V6T 1Z4, Canada.
Jane ShenDepartment of Pediatrics, BC Children's Hospital Research Institute, University of British Columbia, Vancouver, BC V6H 3V4, Canada.
Javed GillBC Children's Hospital, Vancouver, BC V6H 3N1, Canada.
Tim F OberlanderDepartment of Pediatrics, BC Children's Hospital Research Institute, University of British Columbia, Vancouver, BC V6H 3V4, Canada.ORCID 0000-0003-4781-6579

Funding

BC Children's Hospital Research Institute Digital Health Accelerator GrantCanadian Child Health Clinician-Scientist Program Postdoctoral fellowship
6 · The paper itself

Abstract

Data tracking is a common feature of pain e-health applications, however, viewing visualizations of this data has not been investigated for its potential as an intervention itself. We conducted a pilot feasibility parallel randomized cross-over trial, 1:1 allocation ratio. Participants were youth age 12-18 years recruited from a tertiary-level pediatric chronic pain clinic in Western Canada. Participants completed two weeks of Ecological Momentary Assessment (EMA) data collection, one of which also included access to a data visualization platform to view their results. Order of weeks was randomized, participants were not masked to group assignment. Objectives were to establish feasibility related to recruitment, retention, and participant experience. Of 146 youth approached, 48 were eligible and consented to participation, two actively withdrew prior to the EMA. Most participants reported satisfaction with the process and provided feedback on additional variables of interest. Technical issues with the data collection platform impacted participant experience and data analysis, and only 48% viewed the visualizations. Four youth reported adverse events not related to visualizations. Data visualization offers a promising clinical tool, and patient experience feedback is critical to modifying the platform and addressing technical issues to prepare for deployment in a larger trial.

Indexed as

chronic paindata visualizationfeasibilitypediatric

Identifiers

PMID37628354
PMCPMC10452969

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.