Evidence map›Paper›PMID 37628312›Full record

ArticleChildren (Basel, Switzerland)2023

Family Needs Assessment of Patients with Cerebral Palsy Attending Two Hospitals in Accra, Ghana.

Abena K Aduful, Faye Boamah-Mensah, Mame Yaa Nyarko, Margaret L Neizer, Yvonne N Brew, Lovia A Williams, Benedict N L Calys-Tagoe, Henry K M Ackun, Edem M A Tette

Abstract read
In one paragraph

Article in Children (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Observational
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Abena K AdufulDepartment of Family Medicine, Korle-Bu Teaching Hospital, Accra P.O. Box GP 4236, Ghana.ORCID 0009-0000-1618-6944
Faye Boamah-MensahPrincess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana.
Mame Yaa NyarkoPrincess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana.
Margaret L NeizerPrincess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana.
Yvonne N BrewDepartment of Child Health, Greater Accra Regional Hospital (GARH), Accra P.O. Box GP 473, Ghana.
Lovia A WilliamsDepartment of Child Health, Korle-Bu Teaching Hospital, Accra P.O. Box GP 4236, Ghana.
Benedict N L Calys-TagoeDepartment of Community Health, University of Ghana Medical School, Accra P.O. Box GP 4236, Ghana.
Henry K M AckunDepartment of Family Medicine, Duffus Health Center, Halifax, NS B3M 3Y7, Canada.
Edem M A TettePrincess Marie Louise Children's Hospital, Accra P.O. Box GP 122, Ghana.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe family represents the most essential and supportive environment for children with cerebral palsy (CP). To improve children's outcomes, it is crucial to consider the needs of families in order to offer family-centered care, which tailors services to these needs.

objectiveWe conducted a needs assessment to identify the family needs of patients with CP attending two hospitals in Accra.

methodsThe study was a cross-sectional study involving primary caregivers of children with CP attending neurodevelopmental clinics. Structured questionnaires were used to collect data spanning an 8-month period. The data were summarized, and statistical inference was made.

resultsService needs identified were childcare, counseling, support groups, financial assistance, and recreational facilities. Information needs included adult education, job training/employment opportunities, education, health and social programs, knowledge about child development, and management of behavioral and feeding/nutrition problems. Reducing extensive travel time was desirable to improve access to healthcare. With the increasing severity of symptoms came the need for improved accessibility in the home to reduce the child's hardship, as well as assistive devices, recreational facilities, and respite for the caregiver(s).

conclusionFamilies of children with CP have information, service, and access needs related to their disease severity and family context.

Indexed as

accessibilityassistive devicescaregiverscerebral palsy (CP)childrendevelopmental disorderdisabilityfamily-centered carefamily needshealthcare

Identifiers

PMID37628312
PMCPMC10453618

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.