Evidence map›Paper›PMID 37624473›Full record

ArticleMaternal and child health journal2025

Scaling Family Voices and Engagement to Measure and Improve Systems Performance and Whole Child Health: Progress and Lessons from the Child and Adolescent Health Measurement Initiative.

Christina D Bethell, Nora Wells, David Bergman, Colleen Reuland, Scott P Stumbo, Narangerel Gombojav, Lisa A Simpson

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Maternal and child health journal, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Christina D BethellChild and Adolescent Health Measurement Initiative, Department of Population, Family and Reproductive Health, Bloomberg School of Public Health, Johns Hopkins University, 615 N. Wolfe Street, Room E4152, Baltimore, MD, 21205, USA. cbethell@jhu.edu.ORCID http://orcid.org/0000-0001-6269-3234
Nora WellsFamily Voices, 1250 I St NW #250, Washington, DC, 20005, USA.
David BergmanDepartment of Pediatrics, General Pediatrics, Stanford Medicine Children's Health, MSOB, 1265 Welch Road X240, Palo Alto, CA, 94305-5459, USA.
Colleen ReulandOregon Pediatric Improvement Project, Department of Pediatrics, Division of General Pediatrics, Oregon Health and Sciences University, 707 SW Gaines St, Mail Code CDRC-P, Portland, OR, 97239, USA.
Scott P StumboChild and Adolescent Health Measurement Initiative, Department of Population, Family and Reproductive Health, Bloomberg School of Public Health, Johns Hopkins University, 615 N. Wolfe Street, Room E4152, Baltimore, MD, 21205, USA.
Narangerel GombojavChild and Adolescent Health Measurement Initiative, Department of Population, Family and Reproductive Health, Bloomberg School of Public Health, Johns Hopkins University, 615 N. Wolfe Street, Room E4152, Baltimore, MD, 21205, USA.
Lisa A SimpsonAcademyHealth, 1666 K St NW #1100, Washington, DC, 20006, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe 1997 legislation authorizing the United States Child Health Insurance Program sparked progress to measure and publicly report on children's healthcare services quality and system performance. To meet the moment, the national Child and Adolescent Health Measurement Initiative (CAHMI) public-private collaboration was launched to put families at the center of defining, measuring and using healthcare performance information to drive improved services quality and outcomes.

methodsSince 1996 the CAHMI followed an intentional path of collaborative action to (1) articulate shared goals for child health and advance a comprehensive, life-course and outcomes-based healthcare performance measurement and reporting framework; (2) collaborate with families, providers, payers and government agencies to specify, validate and support national, state and local use of dozens of framework aligned measures; (3) create novel public-facing digital data query, collection and reporting tools that liberate data findings for use by families, providers, advocates, policymakers, the media and researchers (Data Resource Center, Well Visit Planner); and (4) generate field building research and systems change agendas and frameworks (Prioritizing Possibilities, Engagement In Action) to catalyze prevention, flourishing and healing centered, trauma-informed, whole child and family engaged approaches, integrated systems and supportive financing and policies.

conclusionsLessons call for a restored, sustainable family and community engaged measurement infrastructure, public activation campaigns, and undeterred federal, state and systems leadership that implement policies to incentivize, resource, measure and remove barriers to integrated systems of care that scale family engagement to equitably promote whole child, youth and family well-being. Population health requires effective family engagement.

Indexed as

Child HealthChild Health ServicesFamilyQuality ImprovementQuality of Health CareAdolescentChildFemaleHumansUnited StatesChild and adolescent health measurement initiative (CAHMI)Child health care quality and systems performance measurementChildren’s healthcare system transformationFamily voices and family engagementWhole child and family well-being and flourishing

Identifiers

PMID37624473
PMCPMC12443881

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.