Evidence map›Paper›PMID 37619592›Full record

ArticleCancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology2023

"It's Probably Just Hemorrhoids": A Qualitative Exploration of the Lived Experiences and Perceptions of Long-term Survivors of Early-Onset Colorectal Cancer.

Charles R Rogers, Kevin M Korous, Mary A De Vera, Aasma Shaukat, Ellen Brooks, Kelly Krupa Rifelj, Candace Henley, Wenora Johnson, Tiana N Rogers

Abstract read
In one paragraph

Article in Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Listening to patients: A qualitative study on diagnostic delay, coping strategies and stigma in early-onset colorectal cancer.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2025
    Article
  3. Article
  4. Understanding the impact of early onset colorectal cancer on quality of life: a qualitative analysis of online forum data.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Charles R RogersMedical College of Wisconsin, Institute for Health & Equity, Milwaukee, Wisconsin.ORCID 0000-0002-3571-8229
Kevin M KorousMedical College of Wisconsin, Institute for Health & Equity, Milwaukee, Wisconsin.ORCID 0000-0001-6825-374X
Mary A De VeraUniversity of British Columbia, Vancouver, British Columbia, Canada.ORCID 0000-0002-2205-2683
Aasma ShaukatNew York University, Grossman School of Medicine, Department of Medicine, New York, New York.ORCID 0000-0003-2446-8858
Ellen BrooksUniversity of Utah School of Medicine, Department of Family & Preventive Medicine, Salt Lake City, Utah.ORCID 0000-0002-5891-2382
Kelly Krupa RifeljMedical College of Wisconsin, Institute for Health & Equity, Milwaukee, Wisconsin.ORCID 0000-0002-9094-0447
Candace HenleyThe Blue Hat Foundation, Chicago, Illinois.ORCID 0000-0002-1854-5901
Wenora JohnsonPatient-Centered Outcomes Research Institute, Chicago, Illinois.ORCID 0000-0003-4535-8391
Tiana N RogersUniversity of Utah, Eccles School of Business, Sorenson Impact Center, Salt Lake City, Utah.ORCID 0000-0003-1779-0697

Funding

Developing a Barbershop-Based Trial on Masculinity Barriers to Care and Colorectal Cancer Screening Uptake among African-American Men using a MixedMethods ApproachK01CA234319 · NCI · UNIVERSITY OF UTAH · PI ROGERS, CHARLES R. · 2018 to 2022
$878k
NCI NIH HHS K01 CA234319
6 · The paper itself

Abstract

backgroundColorectal cancer among adults aged <50 years [early-onset colorectal cancer (EOCRC)] is projected to be the leading cause of cancer-related death by 2030. Although evidence-based guidelines for colorectal cancer screening now recommend beginning screening at age 45, the needs of many at-risk young adults are potentially being overlooked. Unanswered questions also remain regarding the effects of EOCRC on quality-of-life and psychosocial outcomes. This qualitative study explored the lived experiences and perceptions of a sample of adult EOCRC survivors in the United States through one-on-one interviews.

methodsAn EOCRC advocate survivor team member led 27 structured virtual interviews using a 10-question interview guide. Data were analyzed using a 9-step inductive approach.

resultsParticipants were geographically diverse. Most were women (66.6%) who self-identified as non-Hispanic White (85.2%). The mean age at interview was 40.19 ± 5.99; at diagnosis, 33.93 ± 5.90. Six overarching themes emerged: signs and symptoms, risk factors, system-level factors, quality of life, social support, and reflection.

conclusionsThe specific needs of individuals in this younger population of patients with colorectal cancer should be considered during treatment and future interventions and throughout survivorship. IMPACT: While the reasons for the increasing incidence of EOCRC are currently unknown, the lived experiences and perceptions of EOCRC survivors noted in this study highlight specific needs of this population that can inform educational materials, comprehensive care, future research, and policy change.

Indexed as

Colorectal NeoplasmsHemorrhoidsFemaleHumansMaleMiddle AgedQuality of LifeSocial SupportSurvivorsUnited StatesYoung Adult

Identifiers

PMID37619592
PMCPMC10873071

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.