Evidence map›Paper›PMID 37612695›Full record

ArticleBMC pediatrics2023

Web-based follow-up tool (ePIPARI) of preterm infants-study protocol for feasibility and performance.

Tiina Saarinen, Milla Ylijoki, Liisa Lehtonen, Petriina Munck, Suvi Stolt, Helena Lapinleimu, Päivi Rautava, Leena Haataja, Sirkku Setänen, Marika Leppänen and 5 more

Registry-linked trialOpen access · goldAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05238168 (ePIPARI - Digital Follow-up of Preterm Infants During First Two Years), which is not on this map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05238168 unknown statusnot on this map

ePIPARI - Digital Follow-up of Preterm Infants During First Two Years

TypeobservationalSponsorTurku University HospitalRan2019 to 2025Enrolled70ConditionsPreterm Birth, Development Delay, Sensory Disorder, Growth DisordersArmsePIPARI digital follow up tool
3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 2 institutions in 1 country.

Tiina SaarinenDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of Turku, Turku, Finland. tiina.m.saarinen@utu.fi.ORCID http://orcid.org/0000-0001-7312-095X
Milla YlijokiDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of Turku, Turku, Finland.
Liisa LehtonenDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of Turku, Turku, Finland.
Petriina MunckDepartment of Psychology and Logopedics, Faculty of Medicine, University of Helsinki, Helsinki, Finland.
Suvi StoltDepartment of Psychology and Logopedics, Faculty of Medicine, University of Helsinki, Helsinki, Finland.
Helena LapinleimuDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of Turku, Turku, Finland.
Päivi RautavaDepartment of Public Health, University of Turku, Turku, Finland.
Leena HaatajaDepartment of Pediatric Neurology, Children's Hospital and Pediatric Research Center, Helsinki University Hospital and University of Helsinki, Helsinki, Finland.
Sirkku SetänenDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of Turku, Turku, Finland.
Marika LeppänenDepartment of Public Health and Psychiatry, and University of Turku, Turku, Finland.
Mira HuhtalaDepartment of Public Health, University of Turku, Turku, Finland.
Katriina SaarinenDepartment of Paediatrics and Adolescent Medicine, Turku University Hospital and University of Turku, Turku, Finland.
Linda GrönroosDepartment of Paediatric Neurology, Turku University Hospital and University of Turku, Turku, Finland.
Riikka KorjaDepartment of Psychology, and Speech Pathology, University of Turku, Turku, Finland.
PIPARI Study group
University of Turku · FIUniversity of Helsinki · FI

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPreterm infants have a risk of health and developmental problems emerging after discharge. This indicates the need for a comprehensive follow-up to enable early identification of these problems. In this paper, we introduce a follow-up tool "ePIPARI - web-based follow-up for preterm infants". Our future aim is to investigate whether ePIPARI is a feasible tool in the follow-up of preterm infants and whether it can identify children and parents in need of clinical interventions.

methodsePIPARI includes eight assessment points (at term age and at 1, 2, 4, 8, 12, 18, and 24 months of corrected age) when the child´s health and growth, eating and feeding, neurodevelopment, and parental well-being are evaluated. ePIPARI consists of several widely used, standardized questionnaires, in addition to questions typically presented to parents in clinical follow-up visits. It also provides video guidance and written information about age-appropriate neurodevelopment for the parents. Parents of children born before 34 weeks of gestation during years 2019-2022 are being invited to participate in the ePIPARI study, in which web-based follow-up with ePIPARI is compared to clinical follow-up. In addition, the parents of children born before 32 weeks of gestation, who reached the corrected age of two years during 2019-2021 were invited to participate for the assessment point of 24 months of ePIPARI. The parents are asked to fill in the online questionnaires two weeks prior to each clinical follow-up visit. DISCUSSION: The web-based tool, ePIPARI, was developed to acquire a sensitive and specific tool to detect infants and parents in need of further support and clinical interventions. This tool could allow individualized adjustments of the frequency and content of the clinical visits.

trial registrationClinicalTrials.cov, NCT05238168 . Registered 11 April 2022 - Retrospectively registered.

Indexed as

Infant, PrematureParentsChild, PreschoolFeasibility StudiesFollow-Up StudiesHumansInfantInfant, NewbornInternetEarly interventioneHealthNeonatal follow-upNeurodevelopmentNICUParental wellbeing

Identifiers

PMID37612695
PMCPMC10463747
OpenAlexW4386094935

What OpenQuestion holds

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LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.