ArticlePalliative medicine2023
A grounded theory study exploring palliative care healthcare professionals' experiences of managing digital legacy as part of advance care planning for people receiving palliative care.
Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
7 citing papers in PubMed.
- [Digital legacy in hospice and palliative care : An online survey of professionals and volunteers aged 50 and above].Zeitschrift fur Gerontologie und Geriatrie · 2026Article
- The digital legacy in end-of-life care: unspectacular and meaningless, or not enough recognized? An online survey on the attitudes and personal experiences of professionals and volunteers.BMC palliative care · 2026Article
- Healthcare professionals' perspectives toward innovation in palliative care across European settings: an exploratory mixed-methods study.Frontiers in public health · 2026Article
- Exploring Perspectives of Health Care Professionals on AI in Palliative Care: Qualitative Interview Study.JMIR human factors · 2025Article
- Patient considerations of social media account management after death.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Legacy in End-of-Life Care: A Concept Analysis.Nursing reports (Pavia, Italy) · 2024Review
- From illness management to quality of life: rethinking consumer health informatics opportunities for progressive, potentially fatal illnesses.Journal of the American Medical Informatics Association : JAMIA · 2024Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDigital legacy refers to the online content available about someone following their death. This may include social media profiles, photos, blogs or gaming profiles. Some patients may find it comforting that their digital content remains online, and those bereaved may view it as a way to continue bonds with the deceased person. Despite its growing relevance, there is limited evidence worldwide around the experiences of palliative care professionals in supporting patients to manage their digital legacy.
aimTo identify palliative care healthcare professionals' experiences of supporting patients receiving palliative care in managing digital legacy as part of advance care planning discussions.
designA constructivist grounded theory approach was used to understand healthcare professionals' experiences of managing digital legacy. Semi-structured interviews were carried out. SETTING AND
participantsParticipants were 10 palliative care healthcare professionals from across the multidisciplinary team working in a hospice in the North-West of England.
resultsFour theoretical categories were found to revolve around an emergent theory 'understanding the impact of digital legacy' which describe the experiences of palliative care healthcare professionals managing digital legacy as part of advance care planning. These were '
conclusionsThe emerging theory '
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.