Evidence map›Paper›PMID 37597589›Full record

ArticleJournal of pain and symptom management2023

The Duality of "Goals of Care" Language: A Qualitative Focus Group Study With Frontline Clinicians.

Michaella M Reif, Katharine E Secunda, Justin T Clapp, Elizabeth M Viglianti, Ruben Mylvaganam, Michael Peliska, Jane L Holl, Jacqueline M Kruser

Open access · hybridAbstract read
In one paragraph

Article in Journal of pain and symptom management, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 10 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 1 country.

Michaella M ReifDepartment of Medicine (M.M.R., M.P.), University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA.
Katharine E SecundaDepartment of Medicine (K.E.S.), Division of Pulmonary, Allergy and Critical Care, University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Justin T ClappDepartment of Anesthesiology & Critical Care (J.T.C.), University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Elizabeth M VigliantiDivision of Pulmonary and Critical Care (E.M.V.), University of Michigan, Ann Arbor, Michigan, USA; Veterans Affairs Center for Clinical Management Research (E.M.V.), HSR&D Center for Innovation, Ann Arbor, Michigan, USA.
Ruben MylvaganamDivision of Pulmonary and Critical Care (R.M.), Northwestern Memorial Hospital, Chicago, Illinois, USA.
Michael PeliskaDepartment of Medicine (M.M.R., M.P.), University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA.
Jane L HollDepartment of Neurology, Biological Sciences Division (J.L.H.), University of Chicago, Chicago, Illinois, USA.
Jacqueline M KruserDepartment of Medicine (J.M.K.), Division of Allergy, Pulmonary and Critical Care, University of Wisconsin School of Medicine and Public Health, Madison, Wisconsin, USA. Electronic address: jkruser@wisc.edu.
University of Wisconsin–Madison · USUniversity of Pennsylvania · USNorthwestern Memorial Hospital · USUniversity of Chicago · USUniversity of Michigan · US

Funding

Improving Risk-Stratification in Patients with Prolonged ICU StaysK23HL157364 · NHLBI · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI VIGLIANTI, ELIZABETH MARIE · 2021 to 2025
$913k
CHANGE OF GRANTEE INSTITUTION K23 HL146890 A Systems Approach to Align ICU Care with Patient Treatment GoalsK23HL146890 · NHLBI · UNIVERSITY OF WISCONSIN-MADISON · PI KRUSER, JACQUELINE MARIE · 2019 to 2023
$877k
NHLBI NIH HHS K23 HL146890NHLBI NIH HHS K23 HL157364
6 · The paper itself

Abstract

contextThe phrase "goals of care" (GOC) is common in serious illness care, yet it lacks clarity and consistency. Understanding how GOC is used across healthcare contexts is an opportunity to identify and mitigate root causes of serious illness miscommunication.

objectivesWe sought to characterize frontline palliative and critical care clinicians' understanding and use of the phrase GOC in clinical practice.

methodsWe conducted a secondary qualitative thematic analysis of focus group transcripts (n = 10), gathered as part of a parent study of care delivery for patients with respiratory failure. Participants (n = 59) were members of the palliative and critical care interprofessional teams at two academic medical centers.

resultsClinicians primarily use GOC as a shorthand signal among team members to indicate a patient is nearing the end of life. This signal can also indicate conflict with patients and families when clinicians' expectations-typically an expected "transition" toward a different type of care-are not met. Clinicians distinguish their clinical use of GOC from an "ideal" meaning of the phrase, which is broader than end of life and focused on patients' values. Palliative care specialists encourage other clinicians to shift toward the "ideal" GOC concept in clinical practice.

conclusionFrontline palliative and critical care clinicians understand a duality in GOC, as an idealized concept and as an expeditious signal for clinical care. Our findings suggest ambiguous phrases like GOC persist because of unmet needs for better ways to discuss and address diverse and complex priorities for patients with serious illness.

Indexed as

GoalsPalliative CareDeathFocus GroupsHumansLanguagePatient Care PlanningHealth communicationMedical decision-makingPalliative care

Identifiers

PMID37597589
PMCPMC10845157
OpenAlexW4385979856

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.