Evidence map›Paper›PMID 37597057›Full record

SynthesisRheumatology international2023

Promoting awareness of terminology related to unmet medical needs in context of rheumatic diseases in Japan: a systematic review for evaluating unmet medical needs.

Susumu Yamazaki, Kazushi Izawa, Masakazu Matsushita, Akinori Moriichi, Dai Kishida, Hajime Yoshifuji, Ken Yamaji, Ryuta Nishikomori, Masaaki Mori, Takako Miyamae

Abstract readSystematic Review
PubMed Publisher
In one paragraph

Synthesis in Rheumatology international, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Susumu YamazakiDepartment of Pediatrics and Adolescent Medicine, Juntendo University Graduate School of Medicine, 2-1-1, Hongo, Bunkyo-ku, Tokyo, 113-8421, Japan. susumu@juntendo.ac.jp.ORCID http://orcid.org/0000-0003-2327-9297
Kazushi IzawaDepartment of Pediatrics, Faculty of Medicine, Kyoto University, Kyoto, Japan.ORCID http://orcid.org/0000-0003-1080-0936
Masakazu MatsushitaDepartment of Internal Medicine and Rheumatology, Faculty of Medicine, Juntendo University, Tokyo, Japan.ORCID http://orcid.org/0000-0003-3058-5778
Akinori MoriichiDivision of Specific Pediatric Chronic Diseases, Research Institute, National Center for Child Health and Development, Tokyo, Japan.ORCID http://orcid.org/0000-0001-5239-1830
Dai KishidaDepartment of Medicine (Neurology & Rheumatology), Shinshu University School of Medicine, Nagano, Japan.ORCID http://orcid.org/0000-0001-8309-7984
Hajime YoshifujiDepartment of Rheumatology and Clinical Immunology, Graduate School of Medicine, Kyoto University, Kyoto, Japan.ORCID http://orcid.org/0000-0001-7082-4900
Ken YamajiDepartment of Internal Medicine and Rheumatology, Faculty of Medicine, Juntendo University, Tokyo, Japan.ORCID http://orcid.org/0000-0002-0565-1828
Ryuta NishikomoriDepartment of Pediatrics and Child Health, Kurume University School of Medicine, Fukuoka, Japan.ORCID http://orcid.org/0000-0002-9407-6158
Masaaki MoriDepartment of Lifetime Clinical Immunology, Graduate School of Medical and Dental Sciences, Tokyo Medical and Dental University, Tokyo, Japan.ORCID http://orcid.org/0000-0003-2130-4866
Takako MiyamaePediatric Rheumatology, Institute of Rheumatology, Tokyo Women's Medical University School of Medicine, Nagano, Japan.ORCID http://orcid.org/0000-0002-0568-1496

Funding

Ministry of Health, Labour and Welfare 20FE0101
6 · The paper itself

Abstract

To optimize patient prognosis, patient needs, including unmet needs, should be adequately assessed. However, such needs are more challenging to report and, consequently, more likely to go unmet compared with the needs reported by physicians. We aimed to determine the appropriate direction of future research on unmet medical needs in rheumatic diseases in Japan by conducting a literature review. We searched PubMed and Web of Science using 23 terms linked to unmet medical needs for major rheumatic diseases in Japan. Further, we collected articles on health-related quality of life and investigated the scales used for assessment, as well as whether the terms "unmet needs" or "unmet medical needs" were used. We identified 949 papers on 10 diseases, including systemic lupus erythematosus, systemic sclerosis, dermatomyositis, juvenile idiopathic arthritis, adult-onset Still's disease, antiphospholipid syndrome, mixed connective tissue disease, Takayasu arteritis, Sjögren's syndrome, and Behçet's disease; 25 of the 949 papers were selected for full-text review. Fifteen articles on five diseases were related to health-related quality of life. The term "unmet needs" was used in only one article. Six out of 15 studies used the 36-item short form survey, whereas the scales used in other studies differed. The optimal treatment plan determined by a physician may not necessarily align with the best interests of the patient. In clinical research, cross sectional and standardized indicators of health-related quality of life should be employed along with highly discretionary questionnaires to assess and optimize resource allocation in healthcare and simultaneously achieve patient-desired outcomes.

Indexed as

Arthritis, JuvenileRheumatic DiseasesAdultCross-Sectional StudiesHumansJapanQuality of LifeAutoimmune diseasesJapanNeeds assessmentPrognosisRheumatologyVasculitis

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.