Evidence map›Paper›PMID 37586868›Full record

ArticleBMJ open2023

Exploring barriers to living donor kidney transplant for African, Caribbean and Black communities in the Greater Toronto Area, Ontario: a qualitative study protocol.

Beth Edwards, Lydia-Joi Marshall, Ghazaleh Ahmadzadeh, Ranie Ahmed, Lydia Angarso, Shilpa Balaji, Princess Okoh, Emma Rogers, Paula Neves, Priscilla Boakye and 3 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.3field-weighted citation impact, top 38% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 5 institutions in 1 country.

Beth EdwardsAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.ORCID 0000-0003-4477-1029
Lydia-Joi MarshallBlack Health Alliance, Toronto, Ontario, Canada.
Ghazaleh AhmadzadehAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Ranie AhmedAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Lydia AngarsoAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Shilpa BalajiAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Princess OkohAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Emma RogersAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Paula NevesAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada.
Priscilla BoakyeToronto Metropolitan University, Toronto, Ontario, Canada.
Jagbir GillUniversity of British Columbia, Vancouver, British Columbia, Canada.
Carl Everton JamesYork University, Toronto, Ontario, Canada.
Istvan MucsiAjmera Transplant Centre, University Health Network, Toronto, Ontario, Canada istvan.mucsi@utoronto.ca.ORCID 0000-0002-4781-4699
University Health Network · CADigital Research Alliance of CanadaToronto Metropolitan University · CAUniversity of British Columbia · CAYork University · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionLiving donor (LD) kidney transplant (KT) is the best treatment option for many patients with kidney failure as it improves quality of life and survival compared with dialysis and deceased donor KT. Unfortunately, LDKT is underused, especially among groups marginalised by race and ethnicity. African, Caribbean and Black (ACB) patients are 60%-70% less likely to receive LDKT in Canada compared with white patients. Research from the USA and the UK suggests that mistrust, cultural and generational norms, access, and affordability may contribute to inequities. To date, no Canadian studies have explored the beliefs and behaviours related to LDKT in ACB communities. Research approaches that use a critical, community-based approach can help illuminate broader structural factors that may shape individual beliefs and behaviours. In this qualitative study, we will investigate barriers to accessing LDKT in ACB communities in the Greater Toronto Area, to enhance our understanding of the perspectives and experiences of ACB community members, both with and without lived experience of chronic kidney disease (CKD). METHODS AND ANALYSIS: Hospital-based and community-based recruitment strategies will be used to recruit participants for focus groups and individual interviews. Participants will include self-identified ACB individuals with and without experiences of CKD and nephrology professionals. Collaboration with ACB community partners will facilitate a community-based research approach. Data will be analysed using reflexive thematic analysis and critical race theory. Findings will be revised based on feedback from ACB community partners. ETHICS AND DISSEMINATION: This study has been approved by the University Health Network Research Ethics Board UHN REB file #15-9775. Study findings will contribute to the codevelopment of culturally safe and responsive educational materials to raise awareness about CKD and its treatments and to improve equitable access to high-quality kidney care, including LDKT, for ACB patients.

Indexed as

Healthcare DisparitiesKidney TransplantationLiving DonorsRenal Insufficiency, ChronicAdultAfrican PeopleBlack PeopleCaribbean PeopleFemaleHumansMaleOntarioQualitative Researchadult nephrologychronic renal failureend stage renal failurehealth equityrenal transplantation

Identifiers

PMID37586868
PMCPMC10432620
OpenAlexW4385863514

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.