Evidence map›Paper›PMID 37584767›Full record

ArticleJournal of autism and developmental disorders2024

Diversity of Participants in Williams Syndrome Intervention Studies.

Eva Shin, Caitlin Ravichandran, Danielle Renzi, Barbara R Pober, Christopher J McDougle, Robyn P Thom

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Eva ShinLurie Center for Autism, 1 Maguire Road, Lexington, MA, 02421, USA.
Caitlin RavichandranLurie Center for Autism, 1 Maguire Road, Lexington, MA, 02421, USA.
Danielle RenziLurie Center for Autism, 1 Maguire Road, Lexington, MA, 02421, USA.
Barbara R PoberMassachusetts General Hospital, Boston, MA, USA.
Christopher J McDougleLurie Center for Autism, 1 Maguire Road, Lexington, MA, 02421, USA.
Robyn P ThomLurie Center for Autism, 1 Maguire Road, Lexington, MA, 02421, USA. rthom@mgh.harvard.edu.ORCID http://orcid.org/0000-0002-8026-6970

Funding

Nancy Lurie Marks Family Foundation n/aWilliams Syndrome Foundation n/a
6 · The paper itself

Abstract

purposeThis study describes participant diversity in Williams syndrome (WS) intervention studies.

methodsA literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity.

resultsEleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years.

conclusionThere is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research.

Indexed as

Williams SyndromeAdolescentAdultChildEthnicityFemaleHumansMaleYoung AdultDiversityEthnicityInterventionRaceRepresentationWilliams syndrome

Identifiers

PMID37584767

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.