ArticlePloS one2023
The Family Involvement in Care Questionnaire-An instrument measuring family involvement in inpatient care.
Article in PloS one, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Family Health Conversations-A Short-Term Supportive Intervention to Improve Family Well-Being, Functioning, and Involvement in Care After Open-Heart Surgery: A Multicenter, Randomized, Parallel-Group Superiority Trial.Journal of family nursing · 2026Trial
- Translation, cross-cultural adaptation and preliminary validation of the Dutch version of the TOGETHER questionnaire - a tool designed to assess how family members of patients perceive their involvement in the care provided by nurses.International journal of nursing studies advances · 2026Article
- Review
- Strengthening Resilience and Mental Well-Being Through the Support4Resilience Toolbox for Leaders in Older Adult Care: Protocol for a Cross-Country Mixed Methods Study (Support4Resilience).JMIR research protocols · 2026Article
- Thinking-aloud methodology applied to health questionnaire development and validation: a scoping review.BMC medical research methodology · 2026Article
- Development and Psychometric Evaluation of the TOGETHER Family-Reported Experience Measure of Nurse-Facilitated Family Engagement in Adult Acute Care.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Cardiometabolic risk pathways in adults with disabilities: A structural equation model of diet quality and functional ability.PloS one · 2026Article
- Family Involvement in Relation to Elective Open-Heart Surgery: A Critical Incident Technique Study From a Family Member Perspective.Scandinavian journal of caring sciences · 2025Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily involvement in care can be seen as a prerequisite for high-quality family-centered care. It has been identified to improve both patient safety and the quality of care by reducing patient complications and hospital length of stay.
objectiveTo develop and evaluate the content validity of a questionnaire measuring family involvement in inpatient care.
methodsThe study followed a systematic approach in building a rigorous questionnaire: identification of domain, item generation, and assessment of content validity. The content validity index was calculated based on ratings of item relevance by an expert group consisting of seven senior nurses. Subsequently, 19 online cognitive interviews using the Think-aloud method were conducted with family members of former patients who had undergone open-heart surgery.
resultsFive aspects of family involvement were identified, and the initial pool of items were selected from two preexisting questionnaires. The experts' ratings resulted in item content validity of 0.71-1.00, and the scale content validity/averaging was 0.90, leading to rewording, exclusion, and addition of items. The pretesting of items through two rounds of cognitive interviews with family members resulted in the identification of three main problem areas: defining family involvement, misinterpretation of different terms, and underuse of the not relevant response option. The problems were adjusted in the final version of the questionnaire, which consists of 16 items with a four-point Likert scale and two open-ended items.
conclusionsThe Family Involvement in Care Questionnaire has demonstrated potential in evaluating family involvement in inpatient care. Further psychometric properties regarding reliability and validity need to be established.
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Registered trials
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