Evidence map›Paper›PMID 37578352›Full record

ArticleBirth defects research2023

Neighborhood social deprivation and healthcare utilization, disability, and comorbidities among young adults with congenital heart defects: Congenital heart survey to recognize outcomes, needs, and well-being 2016-2019.

Ashley Judge, Michael Kramer, Karrie F Downing, Jennifer Andrews, Matthew E Oster, Argelia Benavides, Wendy N Nembhard, Sherry L Farr

Abstract read
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Article in Birth defects research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

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6citing papers in PubMed
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1 · What the graph read from it

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2 · The registry

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3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

8 authors.

Ashley JudgeNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.ORCID 0000-0003-4501-9744
Michael KramerDepartment of Epidemiology, Emory University, Atlanta, Georgia, USA.
Karrie F DowningNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.ORCID 0000-0002-3063-1781
Jennifer AndrewsDepartment of Pediatrics (Cardiology), University of Arizona, Tucson, Arizona, USA.
Matthew E OsterChildren's Healthcare of Atlanta, Atlanta, Georgia, USA.
Argelia BenavidesDepartment of Pediatrics (Cardiology), University of Arizona, Tucson, Arizona, USA.
Wendy N NembhardDepartment of Epidemiology, University of Arkansas for Medical Sciences, Little Rock, Arkansas, USA.ORCID 0000-0002-8318-4049
Sherry L FarrNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

Funding

Intramural CDC HHS CC999999
6 · The paper itself

Abstract

backgroundResearch on the association between neighborhood social deprivation and health among adults with congenital heart defects (CHD) is sparse.

methodsWe evaluated the associations between neighborhood social deprivation and health care utilization, disability, and comorbidities using the population-based 2016-2019 Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG (CH STRONG) of young adults. Participants were identified from active birth defect surveillance systems in three U.S. sites and born with CHD between 1980 and 1997. We linked census tract-level 2017 American Community Survey information on median household income, percent of ≥25-year-old with greater than a high school degree, percent of ≥16-year-olds who are unemployed, and percent of families with children <18 years old living in poverty to survey data and used these variables to calculate a summary neighborhood social deprivation z-score, divided into tertiles. Adjusted prevalence ratios (aPR) and 95% confidence intervals (CI) derived from a log-linear regression model with a Poisson distribution estimated the association between tertile of neighborhood social deprivation and healthcare utilization in previous year (no encounters, 1 and ≥2 emergency room [ER] visits, and hospital admission), ≥1 disability, and ≥1 comorbidities. We accounted for age, place of birth, sex at birth, presence of chromosomal anomalies, and CHD severity in all models, and, additionally educational attainment and work status in all models except disability.

resultsOf the 1435 adults with CHD, 43.8% were 19-24 years old, 54.4% were female, 69.8% were non-Hispanic White, and 33.7% had a severe CHD. Compared to the least deprived tertile, respondents in the most deprived tertile were more likely to have no healthcare visit (aPR: 1.5 [95% CI: 1.1, 2.1]), ≥2 ER visits (1.6 [1.1, 2.3]), or hospitalization (1.6 [1.1, 2.3]) in the previous 12 months, a disability (1.2 [1.0, 1.5]), and ≥1 cardiac comorbidities (1.8 [1.2, 2.7]).

conclusionsNeighborhood social deprivation may be a useful metric to identify patients needing additional resources and referrals.

Indexed as

Heart Defects, CongenitalAdultComorbidityFemaleHumansMalePatient Acceptance of Health CareSocial DeprivationSurveys and QuestionnairesYoung Adultcomorbiditiescongenital heart defectdisabilityhealthcare utilizationneighborhood deprivation

Identifiers

PMID37578352
PMCPMC10916520

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.