Evidence map›Paper›PMID 37568300›Full record

ArticleJournal of clinical medicine2023

Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO)-The First Disease-Specific Self-Report Questionnaire after Traumatic Brain Injury.

Nicole Von Steinbuechel, Marina Zeldovich, Sven Greving, Laiene Olabarrieta-Landa, Ugne Krenz, Dagmar Timmermann, Inga K Koerte, Michaela Veronika Bonfert, Steffen Berweck, Matthias Kieslich and 7 more

Open access · goldAbstract read
In one paragraph

Article in Journal of clinical medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
4.1field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 19 citations in OpenAlex.

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  11. Assessing Pediatric Traumatic Brain Injury and Health-Related Quality of Life in Three Eastern European Countries.Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors at 10 institutions in 3 countries.

Nicole Von SteinbuechelInstitute of Medical Psychology and Medical Sociology, University Medical Center Göttingen, Waldweg 37A, 37073 Göttingen, Germany.
Marina ZeldovichInstitute of Medical Psychology and Medical Sociology, University Medical Center Göttingen, Waldweg 37A, 37073 Göttingen, Germany.ORCID 0000-0003-0172-9904
Sven GrevingInstitute of Medical Psychology and Medical Sociology, University Medical Center Göttingen, Waldweg 37A, 37073 Göttingen, Germany.ORCID 0000-0002-5072-6307
Laiene Olabarrieta-LandaDepartamento de Ciencias de la Salud de la Universidad Pública de Navarra, Campus de Arrosadía, 31006 Pamplona, Spain.ORCID 0000-0002-8305-8720
Ugne KrenzInstitute of Medical Psychology and Medical Sociology, University Medical Center Göttingen, Waldweg 37A, 37073 Göttingen, Germany.ORCID 0000-0002-0518-8781
Dagmar TimmermannInstitute of Medical Psychology and Medical Sociology, University Medical Center Göttingen, Waldweg 37A, 37073 Göttingen, Germany.
Inga K KoertecBRAIN, Department of Child and Adolescent Psychiatry, Psychosomatics, and Psychotherapy, LMU University Hospital, Ludwig-Maximilian University, Nussbaumstrasse 5, 80336 Munich, Germany.ORCID 0000-0003-1281-9286
Michaela Veronika BonfertDepartment of Pediatric Neurology and Developmental Medicine, LMU Center for Development and Children with Medical Complexity, Dr. von Hauner Children's Hospital, LMU University Hospital, Haydnstr. 5, 80336 Munich, Germany.ORCID 0000-0003-0995-9050
Steffen BerweckSpecialist Center for Paediatric Neurology, Neurorehabilitation and Epileptology, Schoen Klinik, Krankenhausstraße 20, 83569 Vogtareuth, Germany.
Matthias KieslichDepartment of Paediatric Neurology, Hospital of Goethe University, Theodor-Stern-Kai 7, 60590 Frankfurt am Main, Germany.
Knut BrockmannInterdisciplinary Pediatric Center for Children with Developmental Disabilities and Severe Chronic Disorders, Department of Pediatrics and Adolescent Medicine, University Medical Center, Robert-Koch-Str. 40, 37075 Göttingen, Germany.
Maike RoedigerDepartment of Pediatric Intensive Care Medicine and Neonatology, University Hospital Muenster, Albert-Schweitzer-Campus 1, 48149 Muenster, Germany.ORCID 0000-0002-1985-9494
Michael LendtNeuropediatrics, St. Mauritius Therapeutic Clinic, Strümper Straße 111, 40670 Meerbusch, Germany.
Michael StaeblerHegau-Jugendwerk GmbH, Neurological Rehabilitation Center for Children, Adolescents and Young Adults, Kapellenstr. 31, 78262 Gailingen am Hochrhein, Germany.
Silke SchmidtDepartment of Health and Prevention, University of Greifswald, Robert-Blum-Str. 13, 17487 Greifswald, Germany.
Holger MuehlanDepartment of Health and Prevention, University of Greifswald, Robert-Blum-Str. 13, 17487 Greifswald, Germany.ORCID 0000-0001-8048-5682
Katrin CunitzInstitute of Medical Psychology and Medical Sociology, University Medical Center Göttingen, Waldweg 37A, 37073 Göttingen, Germany.ORCID 0000-0001-5530-8190
Universitätsmedizin Göttingen · DEUniversität Greifswald · DEGoethe University Frankfurt · DELMU Klinikum · DELudwig-Maximilians-Universität München · DESchön Klinik Vogtareuth · DESt. Mauritius Therapieklinik · DEUniversidad Publica de Navarra · ESUniversität Innsbruck · ATUniversity Hospital Münster · DE

Funding

Dr. Senckenbergische Stiftung/Clementine Kinderhospital Dr. Christ'sche Stiftungen (Germany), Uniscientia Stiftung (Switzerland)
6 · The paper itself

Abstract

The subjective impact of the consequences of pediatric traumatic brain injury (pTBI) on different life dimensions should be assessed multidimensionally and as sensitively as possible using a disease-specific health-related quality of life (HRQoL) instrument. The development and psychometrics of the first such self-report questionnaire for children and adolescents after TBI are reported here. Focus group interviews with children, adolescents, and their parents, cognitive debriefing, item pool generation and reduction using Delphi expert panels were performed. The resulting version was psychometrically tested on 300 individuals aged 8-17 years. After item reduction based on factor analyses, differential item functioning, reliability, and validity were investigated. The final 35 items were associated with six scales (Cognition, Self, Daily Life and Autonomy, Social Relationships, Emotions, Physical Problems). Internal consistency and construct validity were satisfactory. Health-related Quality of life (HRQoL) was significantly lower in older and in female participants, as well as those with cognitive disabilities, anxiety, depression and post-concussion symptoms, than in comparative groups. The new QOLIBRI-KID/ADO is a comprehensive, multidimensional, reliable, and valid instrument, comparable in content and items to the QOLIBRI adult version. Therefore, disease-specific HRQoL can now be measured across the lifespan and may support the amelioration of treatment, care, rehabilitation, and daily life of children and adolescents after TBI.

Indexed as

children and adolescentsdisease-specific health-related quality of life (HRQoL)patient-reported outcome measure (PROM)traumatic brain injury (TBI)

Identifiers

PMID37568300
PMCPMC10419542
OpenAlexW4385278017

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.