Evidence map›Paper›PMID 37566281›Full record

ArticleEuropean journal of pediatrics2023

Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus.

Lucy Bray, Bernie Carter, Joann Kiernan, Ed Horowicz, Katie Dixon, James Ridley, Carol Robinson, Anna Simmons, Jennie Craske, Stephanie Sinha and 35 more

Abstract read
In one paragraph

Article in European journal of pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Reducing distress during vaccine injections: 2026 clinical practice guideline update.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2026
    Guideline
  2. Pooled it
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  8. Designing and Validating Cuidador Web App for Self-Reported Pain among Children and Adolescents in Oncology Care.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

45 authors.

Lucy BrayEdge Hill University, Ormskirk, UK. Brayl@edgehill.ac.uk.ORCID http://orcid.org/0000-0001-8414-3233
Bernie CarterEdge Hill University, Ormskirk, UK.ORCID http://orcid.org/0000-0001-5226-9878
Joann KiernanEdge Hill University and Alder Hey Children's Hospital, Liverpool, UK.ORCID http://orcid.org/0000-0001-7574-8716
Ed HorowiczUniversity of Liverpool, Liverpool, UK.ORCID http://orcid.org/0000-0002-9549-4933
Katie DixonExpert by Experience, Liverpool, UK.
James RidleyEdge Hill University and National Restraint Reduction Network, Ormskirk, UK.ORCID http://orcid.org/0000-0001-6337-9597
Carol RobinsonUniversity of Strathclyde, Glasglow, UK.ORCID http://orcid.org/0000-0001-7363-9735
Anna SimmonsAlder Hey Children's Hospital, Liverpool, UK.
Jennie CraskeAlder Hey Children's Hospital, Liverpool, UK.ORCID http://orcid.org/0000-0003-0506-1569
Stephanie SinhaAlder Hey Children's Hospital, Liverpool, UK.
Liza MortonUniversity of Glasgow, Glasgow, UK.ORCID http://orcid.org/0000-0001-5560-7561
Begonya NafriaSant Joan de Déu Children's Hospital, Barcelona, Spain.ORCID http://orcid.org/0000-0002-4494-3663
Maria ForsnerUmeå University, Umeå, Sweden.ORCID http://orcid.org/0000-0003-1169-2172
Anna-Clara RullanderUmeå University, Umeå, Sweden.ORCID http://orcid.org/0000-0002-3414-5481
Stefan NilssonUniversity of Gothenburg, Gothenburg, Sweden.ORCID http://orcid.org/0000-0002-8847-9559
Laura DarcyUniversity of Borås, Borås, Sweden.
Katarina KarlssonUniversity of Borås, Borås, Sweden.ORCID http://orcid.org/0000-0003-4080-6677
Cath HubbuckGreat Ormond Street Hospital, London, UK.
Maria BrennerTrinity College, Dublin, Ireland.ORCID http://orcid.org/0000-0001-8779-5288
Sian Spencer-LittleGreat Ormond Street Hospital, London, UK.
Kath EvansBarts Health NHS Trust, London, UK.
Andrew RowlandThe University of Salford, Salford, UK.ORCID http://orcid.org/0000-0001-9564-0032
Carol HilliardChildren's Health Ireland (CHI) at Crumlin, Dublin, Ireland.ORCID http://orcid.org/0000-0003-3111-0731
Jennifer PrestonUniversity of Liverpool, Liverpool, UK.ORCID http://orcid.org/0000-0003-4800-234X
Piet L LeroyMaastricht University Medical Centre / Maastricht University, Maastricht, The Netherlands.
Damian RolandUniversity Hospitals of Leicester NHS Trust and Leicester University, Leicester, UK.ORCID http://orcid.org/0000-0001-9334-5144
Lisa BoothUniversity of Cumbria, Cumbria, UK.ORCID http://orcid.org/0000-0001-7957-6501
Jean DaviesBangor University, Bangor, UK.
Holly SaronEdge Hill University, Ormskirk, UK.ORCID http://orcid.org/0000-0001-7563-3409
Marie Edwinson ManssonPaediatric RN, HSC, Lund University, Lund, Sweden.
Ann CoxMidlands Partnership NHS Foundation Trust & Keele University, Keele, UK.ORCID http://orcid.org/0000-0002-8399-8050
Karen FordUniversity of Tasmania and the Royal Hobart Hospital, Tasmani, Australia.ORCID http://orcid.org/0000-0003-2834-721X
Steven CampbellUniversity of Tasmania, Tasmania, Australia.
Julie BlamiresAuckland University of Technology, Auckland, New Zealand.ORCID http://orcid.org/0000-0002-8515-1769
Annette DickinsonAuckland University of Technology, Auckland, New Zealand.ORCID http://orcid.org/0000-0001-7586-4872
Michael NeufeldAuckland University of Technology, Auckland, New Zealand.
Blake PeckFederation University, Victoria, Australia.ORCID http://orcid.org/0000-0002-2444-9780
Marla de AvilaSão Paulo State University , São Paulo, Brazil.ORCID http://orcid.org/0000-0002-6652-4427
Veronica FeegMolloy College in Rockville Centre, New York City, USA.ORCID http://orcid.org/0000-0002-7113-9814
Henny Suzana MedianiUniversitas Padjadjaran, Bandung Ciry, Indonesia.ORCID http://orcid.org/0000-0001-6960-3692
Maha AtoutPhiladelphia University, Amman, Jordan.ORCID http://orcid.org/0000-0002-6290-9100
Maureen D MajamandaUniversity of Malawi, Kamuzu College of Nursing, Malawi, South Africa.ORCID http://orcid.org/0000-0001-8886-3158
Natasha NorthThe Harry Crossley Children's Nursing Development Unit, University of Cape Town, Cape Town, South Africa.ORCID http://orcid.org/0000-0001-5317-8919
Christine ChambersDalhousie University, Halifax, Canada.ORCID http://orcid.org/0000-0002-7138-916X
Fanny RobichaudUlluriaq, Ungava Tulattavik Health Center and UQAM UQO, Québec, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Children continue to experience harm when undergoing clinical procedures despite increased evidence of the need to improve the provision of child-centred care. The international ISupport collaboration aimed to develop standards to outline and explain good procedural practice and the rights of children within the context of a clinical procedure. The rights-based standards for children undergoing tests, treatments, investigations, examinations and interventions were developed using an iterative, multi-phased, multi-method and multi-stakeholder consensus building approach. This consensus approach used a range of online and face to face methods across three phases to ensure ongoing engagement with multiple stakeholders. The views and perspectives of 203 children and young people, 78 parents and 418 multi-disciplinary professionals gathered over a two year period (2020-2022) informed the development of international rights-based standards for the care of children having tests, treatments, examinations and interventions. The standards are the first to reach international multi-stakeholder consensus on definitions of supportive and restraining holds.    Conclusion: This is the first study of its kind which outlines international rights-based procedural care standards from multi-stakeholder perspectives. The standards offer health professionals and educators clear evidence-based tools to support discussions and practice changes to challenge prevailing assumptions about holding or restraining children and instead encourage a focus on the interests and rights of the child. What is Known: • Children continue to experience short and long-term harm when undergoing clinical procedures despite increased evidence of the need to improve the provision of child-centred care. • Professionals report uncertainty and tensions in applying evidence-based practice to children's procedural care. What is New: • This is the first study of its kind which has developed international rights-based procedural care standards from multi-stakeholder perspectives. • The standards are the first to reach international multi-stakeholder consensus on definitions of supportive and restraining holds.

Indexed as

ConsensusDiagnostic Techniques and ProceduresPediatricsAdolescentChildHumansChildrenChild rightsConsensusProceduresRestraint

Identifiers

PMID37566281
PMCPMC10587267

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.