ArticleBMC geriatrics2023
Burden of care and coping strategies among informal caregivers of people with behavioral and psychological symptoms of dementia in rural south-western Uganda.
Article in BMC geriatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.
- The role of family caregivers in supporting older adults in Africa: systematic review.BMC geriatrics · 2025Pooled it
- Meta-synthesis of qualitative research on family caregiving experiences for individuals with cognitive impairment: a systematic review.Frontiers in public health · 2025Pooled it
- Experiences and coping strategies of family caregivers caring for people with behavioural and psychological symptoms of dementia: a systematic review of qualitative studies.International journal of nursing studies advances · 2026Review
- Exploring Satisfaction and Support Needs of Informal Home Caregivers Using Palliative Care Services: A Mixed-Methods Study from Rwanda.Rwanda journal of medicine and health sciences · 2026Article
- Evaluating the Applicability of the Self-Assessment Tool for Family Caregivers (SSA-PA) in Care Counseling According to Section 45 of the German Social Code (SGB XI): A Mixed-Methods Study.Healthcare (Basel, Switzerland) · 2026Article
- Dementia care gaps in Sub-Saharan Africa: A scoping review of technology, environmental, community perspectives, and financial constraints.PLOS global public health · 2026Article
- Training needs of informal caregivers of persons with dementia in rural southwestern Uganda: A qualitative formative study.Global mental health (Cambridge, England) · 2026Article
- Coping strategies among family caregivers of community-dwelling older adults in Lebanon amid the economic crisis.PloS one · 2026Article
- Navigating dementia care: a qualitative study of family care partners' experiences in managing behavioural and psychological symptoms in Lima, Peru.Frontiers in dementia · 2026Article
- Challenges and coping strategies of family caregivers of older adults with dementia in Africa: a systematic review and meta-synthesis.BMC nursing · 2025Article
- Dementia knowledge and caregiver burden among carers of older adults in rural eastern Uganda.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Sense of Coherence and Caregiver Burden Among Informal Caregivers of People with Dementia in China: The Mediating Role of Coping Strategies.Psychology research and behavior management · 2025Article
- Effect of long-term care insurance policy on depression in non-disabled people: evidence from China.BMC public health · 2024Article
- The Effectiveness of a Community Nurse-Led Support Program for Dementia Caregivers in Chinese Communities: The Chongqing Ageing and Dementia Study.Journal of Alzheimer's disease reports · 2023Article
- The Impact of Inappropriate Sexual Behaviors in People With Dementia on Family Caregivers: A Scoping Review.American journal of Alzheimer's disease and other dementiasArticle
- Burden of Care, Depression, and Anxiety Among Family Caregivers of People With Dementia.Journal of primary care & community healthArticle
Corrections and comments
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Authors and funding
8 authors at 1 institution in 1 country.
Funding
Abstract
backgroundCaregiving is a draining role that inflicts a significant level of burden upon caregivers for older people with Behavioral and Psychological Symptoms of Dementia (BPSD). Caregiver burden is associated with poor health outcomes for both the people with BPSD and their caregivers. This study explored the burden of care and coping strategies used by informal caregivers of older people with BPSD in rural Southwestern Uganda.
methodsThis was a qualitative study among informal caregivers of older people with BPSD in Rubanda and Rukiga districts. We conducted in-depth interviews with a purposive sample of 27 caregivers using an interview guide. The interviews were conducted in the local language, audio recorded, transcribed, translated into English, and thematically analyzed.
resultsThere were two major themes: caregiver burden and coping strategies. Caregiver burden was described as financial, physical, psychological and social. Caregivers mainly used emotion-focused coping strategies (religious coping, acceptance and emotional support seeking). Problem-focused coping strategies (planning) and dysfunctional coping strategies (self-distraction) were used to a lesser extent.
conclusionInformal caregivers of people with BPSD adopted both emotional and problem-focused coping strategies to cope with the burden of care for people with BPSD. Such coping strategies seemed to lighten the burden of caring, in the long motivating the caregivers to continue with the caring role.
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