SynthesisChild's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery2023
Gaps in transitional care to adulthood for patients with cerebral palsy: a systematic review.
Synthesis in Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
16 citing papers in PubMed, 34 citations in OpenAlex.
- Transition readiness assessment in cerebral palsy: A qualitative descriptive study.Developmental medicine and child neurology · 2026Article
- Pediatric to adult healthcare transition: A multifaceted issue.Developmental medicine and child neurology · 2026Article
- Evolving rehabilitation needs across the lifespan: a mixed methods study with adults with cerebral palsy.Disability and rehabilitation · 2026Article
- Rehabilitation needs and healthcare utilization of adults with cerebral palsy: A mixed methods study.Journal of pediatric rehabilitation medicine · 2025Article
- Suicidal Ideation in Individuals with Cerebral Palsy: A Narrative Review of Risk Factors, Clinical Implications, and Research Gaps.Journal of clinical medicine · 2025Review
- Adapting a Participatory Group Programme for Caregivers of Children with Complex Neurodisability from Low-, Middle-Income Countries to a High-Income Setting: Moving from "Baby Ubuntu" to "Encompass".International journal of environmental research and public health · 2025Article
- Understanding the Parental Caregiving of Children with Cerebral Palsy in Saudi Arabia: Discovering the Untold Story.International journal of environmental research and public health · 2025Article
- Clinical and instrument-based assessment of balance, gait, and motor functions in pediatric cerebral palsy: A systematic review.Wearable technologies · 2025Review
- Adolescent to adult health care transition for persons with intellectual and developmental disability: current barriers, next steps.Frontiers in pediatrics · 2025Article
- Cervicothoracic ventral-dorsal rhizotomy for treatment of brachial hypertonia in cerebral palsy.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2024Article
- Psychosocial interventions for improving the physical health of young people and adults with attention deficit hyperactivity disorder: a scoping review.BMC psychiatry · 2024Article
- Defining the gaps in transitional care to adulthood for patients in paediatric surgical specialties: a scoping review protocol.BMJ open · 2024Article
- Transition from child to adult health services for young people with cerebral palsy in Ireland; implications from a mixed-methods study.HRB open research · 2024Article
- Satisfaction with health care services in young people with cerebral palsy in the transition period: results from a European multicenter study.Frontiers in medicine · 2024Article
- "We do it all": A qualitative exploration of the caregiver role for young adults with cerebral palsy.Health care transitions · 2024Article
- Health care transition experiences of young adults with medical complexity.Health care transitions · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe transition from pediatric to adult care can be complex and difficult to navigate for adolescents with cerebral palsy (CP). We aimed to assess the current state of transitional care for young persons with CP and delineate guidelines for best practice with opportunities for intervention.
methodsA systematic review was conducted using PRISMA guidelines to search PubMed, Embase, and Scopus databases. Articles were screened for relevance via title and abstract prior to full-text review.
resultsOf 3151 resultant articles, 27 observational studies were included. Fourteen (52%) studies assessed clinical outcomes of patients with CP during and post-transition. Transition-associated poor outcomes included housing instability, unemployment, difficulty forming relationships, increased hospital admission rates, and decreased use of rehabilitation services. Factors associated with improved outcomes included family participation, promotion of self-efficacy, and meeting the adult team before transition. Nine (33%) studies conducted interviews with transition-age persons with CP. Key themes were a lack of transition preparedness, difficulty navigating the adult system, gaps in seamless care, and limited accessibility to specialists and environments suitable for patients with complex care needs. Four (15%) studies examined features of current transition services. Perceived barriers included poor communication within health service teams, limited adult providers accepting CP patients, and the lack of financial resources for specialized care. There was no standardized transition tool or approach.
conclusionThese findings underscore the importance of a planned transition process in optimizing long-term medical and psychosocial outcomes for persons with CP. Further research, including translational, team-based, and community-engaged research, are needed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.