ArticleQualitative health research2023
Participant-Generated Timelines: A Participatory Tool to Explore Young People With Chronic Pain and Parents' Narratives of Their Healthcare Experiences.
Article in Qualitative health research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed.
- Children's Communication Choices About Musculoskeletal Pain and Injury: Insights From a Public Involvement Event.Health expectations : an international journal of public participation in health care and health policy · 2025Trial
- Empowerment of Youth With Intellectual Disabilities Through Inclusive Research in Africa.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Article
- Review
- Understanding School Presenteeism and Absence in Adolescents Affected by Chronic Musculoskeletal Pain: A Qualitative Study.Child: care, health and development · 2025Article
- Barriers, enablers and outcomes reported by parents engaged with the special educational needs system in England: A qualitative study.PloS one · 2025Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
Visual methods are becoming more evident in health research. Timeline drawings have been used as a participatory tool alongside interviews in life course research. In this article, we describe how a method involving timeline generation can explore patient experiences along a treatment continuum. Grounded in previously published evidence and using specific examples from two studies exploring the experiences of young people treated for chronic pain, we outline the key components of this method. Moreover, we highlight the flexibility of its application and the importance of using a person-centered approach in tailoring the application pragmatically to study population-specific needs and characteristics, while answering the research question. We also reflect on how the dynamic visual display of the timeline and participants' explanations add perspective and understanding to complex and multidimensional human experiences associated with healthcare treatment. Furthermore, we outline how this method can help capture changes in the meaning and sense-making of these experiences over time, all the while fostering empowerment in study participants. Finally, the key considerations of using the method are outlined. It is our aim that this article provides the details required to inspire others to consider this novel method as a means of capturing the healthcare experiences of young people with other chronic conditions, an important first step in fostering the changes required to improve the quality of healthcare services and research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.