Evidence map›Paper›PMID 37536524›Full record

ArticleJournal of pain and symptom management2023

"At the End I Have a Say": Engaging the Chinese Community in Advance Care Planning.

Sarah Nouri, Lingsheng Li, Carrie Huang, Anni Chung, Sandy Chen Stokes, Shirley Pan, Elizabeth C Wong, Jeffrey Newman, Joseph W Woo, Joyce Cheng and 8 more

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 7 institutions in 1 country.

Sarah NouriDivision of Palliative Medicine, Department of Medicine (S.N., M.Q., S.Z.P.), University of California San Francisco, San Francisco, California, USA. Electronic address: sarah.nouri@ucsf.edu.
Lingsheng LiDivision of Geriatrics, Department of Medicine (L.L.), University of California San Francisco, San Francisco, California, USA.
Carrie HuangThriving in Place (C.H.), San Francisco, California, USA.
Anni ChungSelf-Help for the Elderly (A.C.), San Francisco, California, USA.
Sandy Chen StokesChinese American Coalition for Compassionate Care (S.C.S., S.P.), Cupertino, California, USA.
Shirley PanChinese American Coalition for Compassionate Care (S.C.S., S.P.), Cupertino, California, USA.
Elizabeth C WongIndependent community advocate (E.C.W.), San Francisco, California, USA.
Jeffrey NewmanInstitute for Health & Aging, University of California San Francisco (J.N.), San Francisco, California, USA.
Joseph W WooChinese Community Healthcare Association (J.W.W.), San Francisco, California, USA.
Joyce ChengChinese Community Health Resource Center (J.C.), San Francisco, California, USA.
Charissa H TanJohn A. Burns School of Medicine, University of Hawai'i at Mānoa (C.H.T.), Honolulu, Hawaii, USA.
Molly WertzMolly Wertz Consulting (M.W.), San Francisco, California, USA.
Elyse Wood-HughesRichmond Senior Center, Golden Gate Senior Services (E.W.H.), San Francisco, California, USA.
Mara QuinnDivision of Palliative Medicine, Department of Medicine (S.N., M.Q., S.Z.P.), University of California San Francisco, San Francisco, California, USA.
Steven Z PantilatDivision of Palliative Medicine, Department of Medicine (S.N., M.Q., S.Z.P.), University of California San Francisco, San Francisco, California, USA.
Courtney R LylesDivision of General Internal Medicine, Department of Medicine (C.R.L.), Zuckerberg San Francisco General Hospital, San Francisco, California, USA.
Christine S RitchieDivision of Palliative Care and Geriatric Medicine, Department of Medicine (C.S.R.), Massachusetts General Hospital and Harvard Medical School, Boston, Massachusetts, USA.
Rebecca L SudoreDivision of Geriatrics, Department of Medicine (R.L.S.), University of California San Francisco, San Francisco, California, USA.
University of California, San Francisco · USCompassionate Cancer Care · USChinese Community Health Resource Center · USGolden Gate University · USHarvard University · USSan Francisco General Hospital · USUniversity of Hawaiʻi at Mānoa · US

Funding

VARC CoreP30AG044281 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI W. JOHN BOSCARDIN · 2013 to 2026
$19.9M
Translational Research Core - Health Engagement & Action Translational (HEAT)P30DK092924 · NIDDK · KAISER FOUNDATION RESEARCH INSTITUTE · PI Alyce Sophia Adams, HILARY Kessler SELIGMAN · 2011 to 2026
$9.2M
Mentoring Researchers in Advance Care Planning for Underrepresented Older Adults at Risk for Alzheimer’s Disease and Related Dementias and Their CaregiversK24AG054415 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI REBECCA L SUDORE · 2017 to 2026
$1.7M
Taking Advance Care Planning (ACP) to Diverse Older Adult Communities: Facilitators, Barriers, and Development of a Novel ACP ToolkitR03AG073989 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI NOURI, SARAH · 2021 to 2022
$323k
NIA NIH HHS K24 AG054415NIA NIH HHS P30 AG044281NIA NIH HHS R03 AG073989NIDDK NIH HHS P30 DK092924
6 · The paper itself

Abstract

contextDespite the association of advance care planning (ACP) with improved patient and caregiver outcomes, Chinese American elders have low rates of ACP.

objectivesAssess ACP facilitators/barriers in the San Francisco (SF) Chinese community and codesign, implement, and test community-based ACP-promoting pilot events.

methodsA Chinese Community Committee (N = 19 community-based organization leaders, health system representatives, community members) conducted focus groups in Cantonese and English with Chinese older adults (age ≥55), caregivers, and community leaders. The Committee designed and implemented pilot events in-person and online. We analyzed focus group data using thematic analysis; assessed pre-to-post-event readiness to engage in ACP (validated survey; 14 scale, 4 = most ready); and assessed event acceptability.

resultsA total of 34 people participated in six focus groups. Themes described Chinese community-specific importance of ACP (e.g., reduces family burden), barriers (e.g., younger generations lack tools to discuss ACP with elders and vice versa), and facilitators (e.g., intergenerational events, culturally/linguistically appropriate materials). Based on focus groups findings, the Committee developed a novel ACP tool and designed intergenerational events. A total of 195 participants attended 10 events; 95% were Chinese, 90% spoke Chinese languages, 80% were women. ACP readiness increased significantly (1.66 [SD 0.84] vs. 2.03 [SD 0.85]; P < 0.001); 94% of participants were comfortable attending and 96% would recommend events.

conclusionCommunity-developed intergenerational events that highlight the value of ACP and address barriers are acceptable and increase ACP engagement in the Chinese community.

Indexed as

Advance Care PlanningEast Asian PeopleAgedAsianFemaleFocus GroupsHumansLanguageMaleUnited StatesAdvance care planningChinese/Asian Americancommunity-based participatory researchhealth disparitiesimplementation science

Identifiers

PMID37536524
PMCPMC10593504
OpenAlexW4385462838

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.