Evidence map›Paper›PMID 37535412›Full record

ArticleJMIR formative research2023

Social Support Among Women With Potential Essure-Related Complaints: Analysis of Facebook Group Content.

Daniëlle van Gastel, Marjolijn L Antheunis, Kim Tenfelde, Daniëlle L van de Graaf, Marieke Geerts, Theodoor E Nieboer, Marlies Y Bongers

Open access · goldAbstract read
In one paragraph

Article in JMIR formative research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact, top 96% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 0 citations in OpenAlex.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Daniëlle van GastelResearch School GROW, University Maastricht, Maastricht, Netherlands.ORCID https://orcid.org/0000-0002-7263-3507
Marjolijn L AntheunisTilburg School of Humanities and Digital Sciences, Tilburg University, Tilburg, Netherlands.ORCID https://orcid.org/0000-0002-7611-742X
Kim TenfeldeTilburg School of Humanities and Digital Sciences, Tilburg University, Tilburg, Netherlands.ORCID https://orcid.org/0000-0002-6924-4738
Daniëlle L van de GraafTilburg School of Humanities and Digital Sciences, Tilburg University, Tilburg, Netherlands.ORCID https://orcid.org/0000-0002-6862-0172
Marieke GeertsTilburg School of Humanities and Digital Sciences, Tilburg University, Tilburg, Netherlands.ORCID https://orcid.org/0009-0002-0498-3844
Theodoor E NieboerRadboud University Medical Center, Nijmegen, Netherlands.ORCID https://orcid.org/0000-0002-4227-1461
Marlies Y BongersResearch School GROW, University Maastricht, Maastricht, Netherlands.ORCID https://orcid.org/0000-0001-9276-9148
Tilburg University · NLMaastricht University · NLRadboud University Nijmegen · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundSocial support groups are an important resource for people to cope with problems. Previous studies have reported the different types of support in these groups, but little is known about the type of reactions that sharing of personal experiences induce among members. It is important to know how and to what extent members of support groups influence each other regarding the consumption of medical care. We researched this in a web-based Facebook group of women sterilized with Essure. Essure was a device intended for permanent contraception. From 2015 onward, women treated with Essure for tubal occlusion raised safety concerns and numerous complaints.

objectiveThis study aimed to evaluate the use of social support in a Facebook community named "Essure problemen Nederland" (EPN; in English, "Essure problems in the Netherlands").

methodsAll posts in the closed Facebook group EPN between March 8 and May 8, 2018, were included. In total, 3491 Facebook posts were analyzed using a modified version of the Social Support Behavior Codes framework created by Cutrona and Suhr in 1992. Posts were abstracted and aggregated into a database. Two investigators evaluated the posts, developed a modified version of the Social Support Behavior Codes framework, and applied the codes to the collected data.

resultsWe found that 92% of messages contained a form of social support. In 68.8% of posts, social support was provided, and in 31.2% of posts, social support was received. Informational and emotional support was the most frequently used form of provided social support (40.6% and 55.5%, respectively). The same distribution was seen with received social support: informational support in 81.5% and emotional support in 17.4% of cases. Our analysis showed a strong correlation between providing or receiving social support and the main form of social support (P<.001). In a total of only 74 (2.2%) cases, women advised each other to seek medical care.

conclusionsThe main purpose of women in the EPN Facebook group was to provide and receive informational or emotional support or both.

Indexed as

EssureFacebookpatient online communitiessocial mediasocial networkssocial supportsterilization

Identifiers

PMID37535412
PMCPMC10436114
OpenAlexW4361983684

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.