Evidence map›Paper›PMID 37531594›Full record

ArticleDementia (London, England)2023

Understanding the experiences of people with dementia and their family carers participating in healthcare student dementia education: A mixed-methods evaluation from the time for dementia programme.

Stephanie Daley, Molly Hebditch, Yvonne Feeney, Georgia Towson, Joanna Pooley, Holly Pietersen, Sube Banerjee

Abstract read
In one paragraph

Article in Dementia (London, England), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Stephanie DaleyCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.ORCID 0000-0002-5842-0492
Molly HebditchCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.ORCID 0000-0001-5768-4827
Yvonne FeeneyCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.ORCID 0000-0003-0026-907X
Georgia TowsonCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.ORCID 0000-0002-5764-9148
Joanna PooleyCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.ORCID 0000-0001-8271-2391
Holly PietersenCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.ORCID 0000-0002-5708-7931
Sube BanerjeeFaculty of Health, University of Plymouth, Plymouth, UK.ORCID 0000-0002-8083-7649

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere is increasing awareness of the potential for positive impacts on student learning from involving people with dementia and family carers within undergraduate teaching. However, research on the experience of people with dementia and their family carers is sparse. This study aimed to evaluate the satisfaction and views of families (people with dementia and their family carers) who volunteered in Time for Dementia (TFD); an educational programme where undergraduate healthcare students visit families at home over a 2-year period.

methodsFamilies taking part in TFD completed a satisfaction survey after taking part in the programme (

resultsOverall satisfaction was high for taking part in TFD, with a perception of contribution, and being of value. There was strong evidence that families enjoyed the experience and would recommend participation to others. Higher numbers of student visits were significantly associated with greater satisfaction. Families identified aspects of the programme that benefited them, with social interaction rating highly. Improvements suggested by the families included increased visit structure and organisational improvements.

conclusionsThis study has sought to evaluate at scale the satisfaction of families taking part in a dementia education programme. It is positive that families report high satisfaction in the programme and identify perceived value for themselves as well as students, suggesting reciprocal benefits. This study contributes to the broader understanding of what Experts by Experience value when taking part in educational interventions.

Indexed as

CaregiversDementiaDelivery of Health CareHumansStudentsSurveys and Questionnairesdementia educationexperts by experiencelived experiencepatient educatorsservice user involvementundergraduate healthcare education

Identifiers

PMID37531594
PMCPMC10521155

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.