Evidence map›Paper›PMID 37528544›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2023

'I became more aware of my actions'-A qualitative longitudinal study of a health psychological group intervention for patients with myalgic encephalomyelitis/chronic fatigue syndrome.

Meeri Keurulainen, Juha Holma, Elina Wallenius, Mikko Pänkäläinen, Jukka Hintikka, Markku Partinen

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04151693 (Health Psychological Group Rehabilitation for Patients With Chronic Fatigue Syndrome), which is not on this map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.7field-weighted citation impact, top 31% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04151693 narecruitingnot on this map

Health Psychological Group Rehabilitation for Patients With Chronic Fatigue Syndrome (ME/CFS)

TypeinterventionalSponsorJoint Authority for Päijät-Häme Social and Health CareRan2019 to 2028Enrolled80ConditionsPsychological Adaptation, Cognitive Change, Adaptive Behavior, FunctioningArmsHealth Psychological Group Rehabilitation for Patients With Chronic Fatigue Syndrome (ME/CFS)
3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 3 citations in OpenAlex.

  1. 'The Second Arrow': A Collaborative Autoethnographic Exploration of What Can Be Learned From One Long COVID Journey.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Meeri KeurulainenDepartment of Psychology, University of Jyväskylä, Jyväskylä, Finland.ORCID 0009-0003-5487-1477
Juha HolmaDepartment of Psychology, University of Jyväskylä, Jyväskylä, Finland.ORCID 0000-0001-9731-0571
Elina WalleniusWellbeing Services County of Päijät-Häme, General Hospital Psychiatry Outpatient Clinic, Lahti, Finland.ORCID 0009-0006-8943-7736
Mikko PänkäläinenWellbeing Services County of Päijät-Häme, General Hospital Psychiatry Outpatient Clinic, Lahti, Finland.ORCID 0000-0002-8340-0928
Jukka HintikkaFaculty of Medicine and Health Technology, University of Tampere, Tampere, Finland.ORCID 0000-0003-1982-0896
Markku PartinenFaculty of Medicine, University of Helsinki, Helsinki, Finland.ORCID 0000-0002-8182-9368
Päijät-Hämeen Keskussairaala · FITampere University · FIUniversity of Helsinki · FIUniversity of Jyväskylä · FI

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo explore myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients' experiences of a health psychological group intervention and its usefulness, non-usefulness or harmfulness for illness management and adjustment.

designA qualitative longitudinal study using inductive content analysis.

methodsSemistructured interviews were conducted with 10 adults. Interviews were conducted before the 16-week intervention, immediately after its completion, and at 3 months after completion.

resultsParticipants reported that the intervention was useful and not harmful. The model improved their ability to cope with ME/CFS by providing them with useful information about the illness along with peer support and professional guidance. Participants reported improved illness management and adjustment, which they perceived as an outcome of achieving new ways of thinking, feeling and acting.

conclusionsParticipants viewed the health psychological approach to group intervention as meeting their needs. To achieve better illness management and adjustment, more consideration should be given to supportive interactional processes with peers and healthcare professionals. PATIENT OR PUBLIC CONTRIBUTION: The intervention was developed to meet patients' needs of finding ways to manage their illness. The research team consulted eight patients with ME/CFS and three clinical centres working with ME/CFS treatment and rehabilitation at the intervention planning stage. Their comments influenced the planning and content of the intervention as well as ethical issues that should be considered, such as potential harm to participants. All participants were informed about the theoretical foundations of the study and the principles guiding the intervention. Participants were not involved in the data analysis. CLINICAL

trial registrationNCT04151693.

Indexed as

Fatigue Syndrome, ChronicAdultAwarenessHumansLongitudinal StudiesQualitative Researchchronic fatiguecognitive behavioural therapyhealth psychologyillness managementME/CFSqualitative longitudinal study

Identifiers

PMID37528544
PMCPMC10632634
OpenAlexW4385476116

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.