Evidence map›Paper›PMID 37510937›Full record

ArticleJournal of clinical medicine2023

Health-Related Quality of Life in Patients Living with Wilson Disease in Spain: A Cross-Sectional Observational Study.

Zoe Mariño, Marina Berenguer, Luis Peña-Quintana, Antonio Olveira, Anna Miralpeix, Isabel Sastre, Ana Reyes-Domínguez, Pilar Castillo, Clàudia García-Solà, Ariadna Bono and 4 more

Open access · goldAbstract read
In one paragraph

Article in Journal of clinical medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 6 institutions in 1 country.

Zoe MariñoLiver Unit, Hospital Clínic Barcelona, Instituto de Investigaciones Biomédicas August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd), European Reference Networks (ERN)-RARE Liver, University of Barcelona, 08007 Barcelona, Spain.
Marina BerenguerDepartment of Gastroenterology and Hepatology, Hospital Universitari i Politècnic La Fe, Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd), Instituto de Investigación Sanitaria (IIS La Fe), 46026 Valencia, Spain.ORCID 0000-0001-9246-4264
Luis Peña-QuintanaPediatric Gastroenterology, Hepatoloy and Nutrition Unit, Complejo Hospitalario Universitario Insular Materno-Infantil, 35016 Las Palmas de Gran Canaria, Spain.ORCID 0000-0001-6052-5894
Antonio OlveiraDepartment of Gastroenterology, Hospital La Paz, 28046 Madrid, Spain.
Anna MiralpeixLiver Unit, Hospital Clínic Barcelona, Instituto de Investigaciones Biomédicas August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd), European Reference Networks (ERN)-RARE Liver, University of Barcelona, 08007 Barcelona, Spain.ORCID 0000-0002-1265-0380
Isabel SastreDepartment of Gastroenterology and Hepatology, Hospital Universitari i Politècnic La Fe, Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd), Instituto de Investigación Sanitaria (IIS La Fe), 46026 Valencia, Spain.
Ana Reyes-DomínguezPediatric Gastroenterology, Hepatoloy and Nutrition Unit, Complejo Hospitalario Universitario Insular Materno-Infantil, 35016 Las Palmas de Gran Canaria, Spain.
Pilar CastilloDepartment of Gastroenterology, Hospital La Paz, 28046 Madrid, Spain.
Clàudia García-SolàLiver Unit, Hospital Clínic Barcelona, Instituto de Investigaciones Biomédicas August Pi i Sunyer (IDIBAPS), Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd), European Reference Networks (ERN)-RARE Liver, University of Barcelona, 08007 Barcelona, Spain.
Ariadna BonoDepartment of Gastroenterology and Hepatology, Hospital Universitari i Politècnic La Fe, Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas (CIBERehd), Instituto de Investigación Sanitaria (IIS La Fe), 46026 Valencia, Spain.
Miriam RomeroDepartment of Gastroenterology, Hospital La Paz, 28046 Madrid, Spain.
Francisco Javier Pérez-SádabaOutcomes'10 SLU, 12071 Castellón de la Plana, Spain.ORCID 0000-0002-8549-9482
Susana AceitunoOutcomes'10 SLU, 12071 Castellón de la Plana, Spain.ORCID 0000-0002-2933-3998
Anna AngueraMedical Department, Alexion, AstraZeneca Rare Diseases, 08028 Barcelona, Spain.
Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas · ESHospital Universitari i Politècnic La Fe · ESHospital Universitario La Paz · ESAstraZeneca (Spain) · ESHospital Universitario Insular de Gran Canaria · ESUniversidad de Las Palmas de Gran Canaria · ES

Funding

Alexion, AstraZeneca, Spain N/A
6 · The paper itself

Abstract

Wilson disease (WD) is a rare copper metabolism disorder caused by mutations in the

Indexed as

adherenceemotional statushealth-related quality of lifereal-world evidenceWilson disease

Identifiers

PMID37510937
PMCPMC10381913
OpenAlexW4385215452

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.