ArticleInternational journal of qualitative studies on health and well-being2023
Caring for a home-dwelling older parent with mental health problems: a narrative analysis of family caregivers' experiences.
Article in International journal of qualitative studies on health and well-being, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Family in the experience of multiprofessional team care for elderly residents of a Therapeutic Residential Service.Revista da Escola de Enfermagem da U S P · 2026Article
- Supporting older-adult behavioral health: building the first state Center of Excellence for Behavioral Health and Aging.Health affairs scholar · 2025Review
- Article
- Reliability and Validity of Self-Concealment Scale in Chinese Older Adults.Psychology research and behavior management · 2023Article
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Authors and funding
3 authors.
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Abstract
purposeTo gain knowledge regarding family caregivers of home-dwelling older adults with mental health problems and the meaning-making of the caregiver's role.
designAn explorative qualitative study involving narrative analysis.
methodsSemi-structured individual interviews were conducted among eight adult children. Interview data were analysed using narrative analysis. The reporting adhered to consolidated criteria for reporting qualitative studies.
resultsEach participant narrated unique and nuanced stories of the caregiver role, but their stories also revealed prominent themes across participants' experiences and meaning-making. The analysis revealed three themes: family relationships through a long life, a demanding and difficult caregiver role, and reconstructing the caregiver's role by leaving the responsibility to healthcare services.
conclusionFamily caregivers experienced the role as purposeful and demanding. Mostly, psychological reactions to behaviour symptoms and duration of caregiving were considered difficult and demanding. They described that they lacked knowledge of the illness and how to perform care. Sharing care responsibility with healthcare services had the potential to ease family caregivers' burden. However, based on a long life as caregivers, some experienced difficulties when reconstructing and adjusting the role to their life situation.
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