ArticleBMC health services research2023
The perceptions and experience of developing patient (version of) guidelines: a descriptive qualitative study with Chinese guideline developers.
Article in BMC health services research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.
What it found
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The trial behind it
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Who cites it
6 citing papers in PubMed, 5 citations in OpenAlex.
- European food-based dietary guidelines: mapping methodological heterogeneity, sustainability integration gaps and implementation barriers.Frontiers in nutrition · 2026Article
- Processes for Developing Plain Language Versions of Guidelines Recommendations: A Scoping Review.Journal of evaluation in clinical practice · 2025Article
- Perceptions and Attitudes of People With Cancer and Diabetes Towards Patient Guidelines: A Mixed Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Approaches to Reach Trustworthy Patient Education: A Narrative Review.Healthcare (Basel, Switzerland) · 2024Review
- Methodology and reporting quality of patient and public versions of guidelines in China: A systematic review.Clinical and public health guidelines · 2024Article
- Improving Delphi Process in Acupuncture Decision Making: Overall Descriptions and Quality Assessment of Delphi Reports.Journal of multidisciplinary healthcare · 2024Review
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 4 countries.
Funding
Abstract
objectiveTo understand developers' perception of patient (versions of) guidelines (PVGs), and identify challenges during the PVG development, with the aim to inform methodological guidance for future PVG development.
methodsWe used a descriptive qualitative design. Semi-structured interviews were conducted virtually from December 2021 to April 2022, with a purposive sampling of 12 PVG developers from nine teams in China. Conventional and directed content analysis was used for data analysis.
resultsThe interviews identified PVG developers' understanding of PVGs, their current practice experience, and the challenges of developing PVGs. Participants believed PVGs were a type of health education material for patients; therefore, it should be based on patient needs and be understandable and accessible. Participants suggested that PVGs could be translated/adapted from one or several clinical practice guidelines (CPG), or developed de novo (i.e., the creation of an entirely new PVG with its own set of research questions that are independent of existing CPGs). Participants perceived those existing methodological guidelines for PVG development might not provide clear instructions for PVGs developed from multiple CPGs and from de novo development. Challenges to PVG development include (1) a lack of standardized and native guidance on developing PVGs; (2) a lack of standardized guidance on patient engagement; (3) other challenges: no publicly known and trusted platform that could disseminate PVGs; concerns about the conflicting interests with health professionals. CONCLUSIONS AND PRACTICE IMPLICATIONS: Our study suggests clarifying the concept of PVG is the primary task to develop PVGs and carry out related research. There is a need to make PVG developers realize the roles of PVGs, especially in helping decision-making, to maximize the effect of PVG. It is necessary to develop native consensus-based guidance considering developers' perspectives regarding PVGs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.