Evidence map›Paper›PMID 37477168›Full record

ArticleJournal of clinical nursing2023

Exploring the role of a facilitator in supporting family carers when embedding the iSupport for Dementia programme in care services: A qualitative study.

Ying Yu, Sarah C Hunter, Lily Xiao, Claudia Meyer, Michael Chapman, Kai Ping Tan, Langduo Chen, Sue McKechnie, Julie Ratcliffe, Shahid Ullah and 3 more

Abstract read
In one paragraph

Article in Journal of clinical nursing, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Trial
  2. Effects of a virtual iSupport Program on carers and people with dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Trial
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Ying YuCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.ORCID https://orcid.org/0000-0001-8110-1038
Sarah C HunterCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
Lily XiaoCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.ORCID https://orcid.org/0000-0002-4631-2443
Claudia MeyerCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
Michael ChapmanAustralian National University, Canberra, Australian Capital Territory, Australia.
Kai Ping TanDepartment of Palliative Care, Canberra Health Services, Garran, Australian Capital Territory, Australia.ORCID https://orcid.org/0009-0006-9845-4394
Langduo ChenCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.ORCID https://orcid.org/0000-0002-8089-9049
Sue McKechnieCommunity Services, Resthaven Incorporated, Bartley Crescent Wayville, South Australia, Australia.
Julie RatcliffeCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
Shahid UllahCollege of Medicine and Public Health, Flinders University, Bedford Park, South Australia, Australia.
Alison KitsonCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, Australia.
Andre Q AndradeClinical and Medical Sciences, Quality Use of Medicines and Pharmacy Research Centre, University of South Australia, Adelaide, South Australia, Australia.
Craig WhiteheadSouthern Adelaide Local Health Network, Adelaide, South Australia, Australia.

Funding

Medical research future fundNational Health and Medical Research CouncilThe dementia centre for research collaboration
6 · The paper itself

Abstract

aimsTo explore stakeholders' perceptions of a facilitator's role in supporting carers when embedding iSupport for Dementia psychoeducation program, in care services.

methodsA qualitative descriptive study design was applied. Data were collected from workshops and interviews with carers of people living with dementia (PLWD)and with health and social care professionals from two tertiary hospitals and two community aged care organisations across three Australian states between October 2021 and March 2022. A thematic analysis was used to analyse data. The COREQ guideline was followed to report our findings.

resultsA total of 30 family carers and 45 health and social care professionals participated in the study. Three main themes and seven subthemes were identified from the data. We described the main themes as (1) the facilitator's role at the time of dementia diagnosis, (2) the facilitator's role throughout the everyday dementia care journey and (3) the facilitator's role during transition moments.

conclusionsCaring for family members with dementia is demanding and stressful for carers. Embedding a facilitator-enabled iSupport for Dementia program in hospital and community aged care settings has the potential to mitigate sources of stress associated with care recipient factors, carer factors and care service factors, and improve the health and well-being of carers and those for whom they care. RELEVANCE TO CLINICAL PRACTICE: Our findings will inform the establishment of iSupport facilitators appointed by dementia care providers in hospital and community care settings and help determine their roles and responsibilities in delivering the iSupport program. Our findings relate to nurse-led and coordinated dementia care in hospital and community aged care settings. PATIENT OR PUBLIC CONTRIBUTION: This study was co-designed with stakeholders from two aged care organisations and two tertiary hospitals. The study participants were staff employed by these organisations and carers of PLWD who were service users.

Indexed as

CaregiversDementiaAgedAustraliaHealth ServicesHumansQualitative Researchcaregiver supportco-designdementiadementia care servicesfacilitatorfamily caregiver

Identifiers

PMID37477168
PMCPMC10947559

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.