Evidence map›Paper›PMID 37466307›Full record

ReviewThe journals of gerontology. Series B, Psychological sciences and social sciences2023

Turning It Over to God: African American Assisted Living Residents' End-of-Life Preferences and Advance Care Planning.

Candace L Kemp, Antonius D Skipper, Alexis A Bender, Molly M Perkins

Abstract readReview
In one paragraph

Review in The journals of gerontology. Series B, Psychological sciences and social sciences, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Candace L KempThe Gerontology Institute, Georgia State University, Atlanta, Georgia, USA.ORCID 0000-0003-4232-4313
Antonius D SkipperThe Gerontology Institute, Georgia State University, Atlanta, Georgia, USA.ORCID 0000-0001-7164-7053
Alexis A BenderDivision of Geriatrics & Gerontology, Department of Medicine, Emory School of Medicine, Atlanta, Georgia, USA.ORCID 0000-0002-7900-923X
Molly M PerkinsDivision of Geriatrics & Gerontology, Department of Medicine, Emory School of Medicine, Atlanta, Georgia, USA.ORCID 0000-0001-5993-8712

Funding

Meaningful Engagement and Quality of Life among Assisted Living Residents with Dementia.R01AG062310 · NIA · GEORGIA STATE UNIVERSITY · PI KEMP, CANDACE LYNN · 2018 to 2022
$3.6M
Investigating Informal Caregivers' Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver OutcomesRF1AG069114 · NIA · EMORY UNIVERSITY · PI PERKINS, MOLLY M · 2021 to 2021
$2.2M
Convoys of Care: Developing Collaborative Care Partnerships in Assisted LivingR01AG044368 · NIA · GEORGIA STATE UNIVERSITY · PI KEMP, CANDACE LYNN · 2013 to 2017
$2.1M
End-of-Life in Assisted Living: Links between Structure, Process, and OutcomesR01AG047408 · NIA · EMORY UNIVERSITY · PI PERKINS, MOLLY M · 2015 to 2019
$1.9M
A longitudinal analysis of methamphetamine use, social relationships, and cognitive function among people living with HIVK01DA053985 · NIDA · EMORY UNIVERSITY · PI BENDER, ALEXIS ANNE · 2021 to 2024
$720k
NIA NIH HHS 5R01AG047408NIA NIH HHS R01 AG044368NIA NIH HHS R01 AG047408NIA NIH HHS R01 AG062310NIA NIH HHS RF1 AG069114NIDA NIH HHS K01DA053985NIH HHS 5R01AG047408
6 · The paper itself

Abstract

objectivesAssisted living (AL), a popular long-term care setting for older Americans, increasingly is a site for end-of-life care. Although most residents prefer AL to be their final home, relatively little is known about end-of-life preferences and advance care planning, especially among African American residents. Our research addresses this knowledge gap.

methodsInformed by grounded theory, we present an analysis of qualitative data collected over 2 years in a 100-bed AL community catering to African American residents. Data consisted of field notes from participant observation conducted during 310 site visits and 818 observation hours, in-depth interviews with 25 residents, and a review of their AL records.

resultsResidents varied in their end-of-life preferences and advance care planning, but united in the belief that God was in control. We identified "Turning it over to God" as an explanatory framework for understanding how this group negotiated end-of-life preferences and advance care planning. Individual-level resident factors (e.g., age, pain, and function) and factors reflecting broader cultural and societal influences, including health literacy and care experiences, were influential. DISCUSSION: Contradictions arose from turning it over to God, including those between care preferences, planning, and anticipated or actual end-of-life outcomes.

Indexed as

Advance Care PlanningTerminal CareAgedBlack or African AmericanDeathHumansPatient PreferenceReligionUnited StatesDeath and dyingHealth disparitiesHealth literacyMinority aging (race/ethnicity)Qualitative methods

Identifiers

PMID37466307
PMCPMC10561881

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.