Evidence map›Paper›PMID 37464365›Full record

ArticleBMC palliative care2023

Experiences of pain and pain management in advanced disease and serious illness for people from South Asian communities in Leeds and Bradford: a qualitative interview study.

Gemma Clarke, Jodie Crooks, Michael I Bennett, Zarina Mirza, Ruby Bhatti Obe, Wali Nazar, Rahila Mughal, Shenaz Ahmed

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 2 pooled it
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 2 syntheses or guidelines pooled it, 10 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Review
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Gemma ClarkeSt Gemma's Academic Unit of Palliative Care, Division of Primary Care Palliative Care and Public Health, Leeds Institute of Health Sciences, University of Leeds, Level 10, Worsley Building, Leeds, LS2 9NL, UK. g.c.clarke@leeds.ac.uk.
Jodie CrooksPolicy and Research Team, Marie Curie, London, UK.
Michael I BennettSt Gemma's Academic Unit of Palliative Care, Division of Primary Care Palliative Care and Public Health, University of Leeds, Leeds, UK.
Zarina MirzaBradford District Care NHS Foundation Trust, Bradford, UK.
Ruby Bhatti ObeIndependent Patient and Public Involvement (PPI) Representative, Bradford, UK.
Wali NazarBradford District Care NHS Foundation Trust, Bradford, UK.
Rahila MughalBradford District Care NHS Foundation Trust, Bradford, UK.
Shenaz AhmedLeeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Bradford District Care NHS Foundation Trust · GBUniversity of Leeds · GBMarie Curie · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPain is a significant problem for many people with advanced disease or a serious illness. Culture and ethnicity can affect the experience and management of pain. However, there is limited research in South Asian communities in the UK on their experiences of pain. The aim of this study is to explore the experiences and attitudes of patients and family carers from South Asian communities about pain and its management within advanced disease or serious illness.

methodsQualitative thematic analysis based on descriptive phenomenology (Sundler et al. 2019). Qualitative semi-structured interviews with patients or family carers from South Asian communities (N = 15). Interviews were recorded, transcribed and analysed using an inductive approach. Public and Patient Involvement representatives from British South Asian communities were consulted for guidance.

resultsThere were five key themes from the interviews: The importance of communication about pain with healthcare professionals; Concerns about taking pain medication; Personal resilience, privacy and self-management; Gender, culture and pain; Home pain management as struggle and frustration.

conclusionTo improve pain management for people from South Asian communities with advanced disease or a serious illness, there are a number of important issues for healthcare professionals from palliative and primary care services to address. These include: greater awareness around people's fears and concerns about pain medication; their potential use of alternative pain management strategies; and cultural issues such as resilience, privacy, dignity and gender roles. Effective communication between doctors, patients and family members could be improved by using a 'cultural humility' model; providing clear and accessible pain medication information; understanding and taking account of people with both low, and medium levels, of English language proficiency; and improving patient trust. Additionally, improvements to out of hours services could improve pain management for all patients managing their pain at home.

Indexed as

Asian PeoplePain ManagementFamilyHumansPainQualitative ResearchUnited KingdomAdvanced diseaseEthnicityPain managementQualitativeSerious illnessSouth Asian communities

Identifiers

PMID37464365
PMCPMC10355000
OpenAlexW4384661595

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.