Evidence map›Paper›PMID 37458491›Full record

SynthesisEuropean journal of physical and rehabilitation medicine2023

The International Classification of Functioning, Disability and Health Core Set for deafblindness. Part I: a systematic review of outcome measures.

Abinethaa Paramasivam, Atul Jaiswal, Shreya Budhiraja, Peter Holzhey, Praveena Santhakumaran, Tosin Ogedengbe, Jana Martin, Supriya DAS, Samuel Côté, Romina Hassid and 9 more

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in European journal of physical and rehabilitation medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
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  5. Article
  6. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Abinethaa ParamasivamWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Atul JaiswalWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada - atul.jaiswal@umontreal.ca.
Shreya BudhirajaWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Peter HolzheyWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Praveena SanthakumaranWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Tosin OgedengbeWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Jana MartinWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Supriya DASWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Samuel CôtéWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Romina HassidWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.
Tyler G JamesDepartment of Family Medicine, University of Michigan Medical School, Ann Arbor, MI, USA.
Beth KennedyCentral Michigan University, Mt Pleasant, MI, USA.
Diana TangFaculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, Australia.
Yvvone TranFaculty of Medicine, Health and Human Sciences, Macquarie University, Sydney, Australia.
Heather Colson-OsborneAnne Sullivan Foundation, Stillorgan, Ireland.
Muriel Li Chen CheCRESAM National Center of Rare Disabilities and Deafblindness, Saint Benoit, France.
Renu MinhasDeafBlind Ontario Services, Newmarket, ON, Canada.
Sarah GranbergÖrebro University, School of Health Sciences, Örebro, Sweden.
Walter WittichWittich Vision Impairment Research Lab, School of Optometry, University of Montreal, Montreal, QC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionThe International Classification of Functioning, Disability, and Health (ICF), developed by the World Health Organization, is a classification framework that focuses on the health and functioning of people with disabilities. As part of an ICF Core Set development, four studies need to be conducted, one of which is a systematic review. This study presents part 1 of the systematic review that aims to describe the outcome measures identified in the literature related to functioning in individuals with deafblindness. EVIDENCE ACQUISITION: The research team screened articles from eight scientific databases, three journals, and Google Scholar (March 2011 to September 2022). Articles were included if they studied individuals with deafblindness aged 18 and older. Studies that examined genetics or laboratory experiments involving animals were excluded. Data were extracted into a logbook with key descriptors such as study location and design, age of study population, and instruments/outcome measures used, which were further categorized into one of the following types: 1) standardized; 2) patient-reported measures, standardized (PT-S); 3) patient-reported measures, not standardized (PT-not S); 4) health professional, reported measures, standardized (HP-S); 5) Technical measures; 6) other measures (parent-reported standardized and laboratory measures). EVIDENCE SYNTHESIS: The review included 147 studies, of which most were conducted in Europe (47.6%) and North America (27.9%). Of the 314 identified outcome measures, 57 were Standardized, 59 were Patient Reported-Standardized (PT-S), 178 were patient reported non-standardized (PT-Not S) variables, 11 were health professional reported, standardized, five were technical, and four were classified as other measures.

conclusionsMost instruments measured functioning in daily activities and the mental health of individuals with deafblindness. Three deafblind-specific instruments were identified in this study, highlighting the need for more deafblind-specific instruments to be developed and utilized in research.

Indexed as

Deaf-Blind DisordersPersons with DisabilitiesActivities of Daily LivingDisability EvaluationHumansInternational Classification of Functioning, Disability and HealthOutcome Assessment, Health CareWorld Health Organization

Identifiers

PMID37458491
PMCPMC10664768

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.