ArticleScientific data2023
What prevents us from reusing medical real-world data in research.
Article in Scientific data, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pseudonymization tools for medical research: a systematic review.BMC medical informatics and decision making · 2025Pooled it
- FAIR by design (TRACE): A Trusted Research Access & Collaboration Environment.BMC medical informatics and decision making · 2026Article
- Data reuse in global health: perspectives from actors in policy, funding and research.BMJ global health · 2026Article
- A function-based framework for AI-amplified, data-driven healthcare simulation research.Advances in simulation (London, England) · 2026Article
- ECLed- a tool supporting the effective use of the SNOMED CT Expression Constraint Language.Journal of biomedical semantics · 2026Article
- Digital Transformation in Healthcare and Nephrology.Cureus · 2026Review
- Lessons learned from implementing FAIRification workflows in diabetes research in Germany.PLOS digital health · 2026Article
- A Multi-Modal Transfer Learning Framework to Reduce Health Disparities in Prostate Adenocarcinoma.bioRxiv : the preprint server for biology · 2025Article
- Process for Quality Management of Electronic Medical Records-Based Data: Case Study Using Real Colorectal Cancer Data.JMIR medical informatics · 2025Article
- Ensuring General Data Protection Regulation Compliance and Security in a Clinical Data Warehouse From a University Hospital: Implementation Study.JMIR medical informatics · 2025Article
- Semantic enrichment of Pomeranian health study data using LOINC and WHO-FIC terminology mapping principles.JAMIA open · 2025Article
- An AI-powered data curation and publishing virtual assistant: usability and explainability/causability of, and patient interest in the first-generation prototype.Frontiers in digital health · 2025Article
- Decades in the Making: The Evolution of Digital Health Research Infrastructure Through Synthetic Data, Common Data Models, and Federated Learning.Journal of medical Internet research · 2024Article
- Augmenting small biomedical datasets using generative AI methods based on self-organizing neural networks.Briefings in bioinformatics · 2024Article
- FHIR-standardized data collection on the clinical rehabilitation pathway of trans-femoral amputation patients.Scientific data · 2024Article
- [Data integration centers-from a concept in the Medical Informatics Initiative to its local implementation in the Network of University Medicine].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Article
- Seeing the primary tumor because of all the trees: Cancer type prediction on low-dimensional data.Frontiers in medicine · 2024Article
- Tackling neurodegenerationFrontiers in molecular neuroscience · 2024Review
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Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
PubMed holds no abstract for this paper.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.