Evidence map›Paper›PMID 37438823›Full record

ArticleHealth research policy and systems2023

Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in Brazil.

Ana Carolina De Freitas Lopes, Hillegonda Maria Dutilh Novaes, Patrícia Coelho De Soárez

Abstract read
In one paragraph

Article in Health research policy and systems, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Ana Carolina De Freitas LopesDepartamento de Medicina Preventiva, Faculdade de Medicina da Universidade de São Paulo, Av. Dr. Arnaldo 455, Cerqueira Cesar, São Paulo, SP, 01246903, Brazil. acflopes@usp.br.ORCID http://orcid.org/0000-0001-5806-5155
Hillegonda Maria Dutilh NovaesDepartamento de Medicina Preventiva, Faculdade de Medicina da Universidade de São Paulo, Av. Dr. Arnaldo 455, Cerqueira Cesar, São Paulo, SP, 01246903, Brazil.ORCID http://orcid.org/0000-0001-9849-0324
Patrícia Coelho De SoárezDepartamento de Medicina Preventiva, Faculdade de Medicina da Universidade de São Paulo, Av. Dr. Arnaldo 455, Cerqueira Cesar, São Paulo, SP, 01246903, Brazil.ORCID http://orcid.org/0000-0001-8383-0728

Funding

Conselho Nacional de Desenvolvimento Científico e Tecnológico 465518-2014
6 · The paper itself

Abstract

backgroundThe aim of this work is to characterize the processes associated with patient and public involvement (PPI) in the form of public consultations (PC) during the first 10 years of operation of the National Committee for Health Technology Incorporation in the Unified Health System (Conitec) of Brazil, and to identify factors associated with changes in Conitec's recommendations following these PC.

methodsThis cross-sectional study analysed all processes related to the adoption of technologies that took place in Brazil between 2012 and 2021 based on technical reports and self-reported information collected from PC participants. A multiple logistic regression model identified factors associated with changes in Conitec's recommendations following PC.

resultsA total of 479 technical reports were published, of which 83% (n = 400) were submitted to PC. Demands were made mainly by applicants from the government (n = 262; 55%), regarding the adoption of medicines (n = 366; 76%), in which context neoplasms and infectious diseases were the most frequent indications (n = 66; 14% for each). A total of 264 (55%) processes resulted in a final recommendation in favour of introducing the technology. Over the period of 10 years, 196 483 contributions were received in response to PC. The largest volume of contributions was made by patients and their families or representatives (n = 99 082; 50%), females (122 895; 67%), white individuals (129 165; 71%) and individuals between the ages of 25 and 59 years (145 364; 80%). Alteration of the preliminary recommendation occurred in 13% (n = 53) of the PC, with a higher proportion of recommendations being altered from 2017 onwards. Increased participation by patients had a significant impact on the alteration of the preliminary recommendation (odds ratio 3.87, 95% CI 1.33-13.35, p = 0.02).

conclusionsIncreased engagement of patients and their families and caregivers in PC was associated with changing the preliminary recommendation of Conitec about the adoption of technologies into the public health system in Brazil.

Indexed as

Public HealthReferral and ConsultationAdultBrazilCross-Sectional StudiesFemaleHumansMiddle AgedRetrospective StudiesDecision-makingHealth technology assessmentLogistic regressionPatient and public involvementPublic consultationStakeholder involvement

Identifiers

PMID37438823
PMCPMC10339481

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.